Thank You from Paulette Motzko to the 26 New Followers in The Last 30 Days.

I would have more followers but I hear there’s no “follow me” button. I will be working on enhancing the features on the site to make that possible. 

The great news is that my followers are tried-and-true, they are genuine, they are intelligent extraordinary individuals whose talents even defy my own comprehension at times. What I envisioned when I created this site in 2012 has become literal reality that is even superseded what my vision was of the best for the site. Every follower every reader has come back like a magnet attrated for all the right reasons -because I am genuine and as what am I long-standing Facebook friends Maria Lourdes Lipardo told me-“you are so transparent”. At the time she said it I didn’t quite know what that meant. Now years later I call it a high compliment.

The world is full of far too many Yes Men comply or go along with a crowd. I’ve never been that kind of person I always have been an individualist.

Because I was misunderstood as a child, I am the quickest to try and understand others, and another person’s point of view. Matters to me to understand communication is Paramount. Just as I was telling a nice lady at the station casino Grand Cafe earlier last night:

We’re all connected on the planet no matter what race color creed. It really doesn’t matter what our faith is but that we believe in something greater than ourselves we treat others with dignity. We don’t need to be like one another, life would be boring if we were. We can learn from each other’s differences and grow as people.

The sun is coming up here in Las Vegas now when I can see the white flowers on the huge Bush surrounding my picture windows blooming. I live upstairs and like it because I’m the one making the noise and its private and I can have a garden on my balcony and go out there anytime and be in my “desert oasis” I created over time.

As I was looking at my statistics here I noticed the atlas of the world filling in with the readership from Canada and many other countries that never read my blog prior. 

Makes me a really feel gratified to know that the many hours that I invest in this site is appealing to all people and has become quite universal.

Thank you for all your contributions and comments app for putting a smile on my face everyday.

May every single person who reads this be blessed. 

Written by Paulette Le Pore Motzko.

Photography and Digital Photo Arts by Paulette L. Motzko, PLM Studios, Las Vegas, Nevada. 

Copyright August 2017.

BLESS THE BEAUTIFUL UNITED STATES OF AMERICA! Happy Flag Day 2017!

Photo created by Paulette L Motzko, Copyright June 2017 PLM Studios.

Wednesday June 14th 2017 at

 Here’s a note about the sparking American flag I used in the photo here….

It is one of my grandmother’s cherished pins she used to wear. She was my mother’s mother and singlehandedly raised her children on her own due to my grandfather James Hubert Hart dying of spinal meningitis when my mother was four years old.

Mom said the day that she finally realized that she was alive was the day she overheard someone talking about who is getting all the kids, and what houses they were all going to because Grandma couldn’t afford to take care of them all herself.

Grandma wasn’t afraid to take a man’s job in a time when it was was very unpopular for a woman to rivet airplanes -but she did. 

There wasn’t anything that could stop my grandmother Ruby Hart.

 She was proud to be an American citizen and so appreciative of everything that you ever did for her— just like my mother.

That’s why when she had Alzheimer’s disease-like my mother had, untiL she touched the face of God nearly a year ago  I didn’t think anything of helping taking care of her.

 I bought her big print Readers Digest books to encourage her to talk and keep her mind active…and they did.

 She read one of them every day … so I bought more for her and she smiled as she read each story.

I found them at local libraries and we would talk about the stories in each story, which would inspire her to tell me about her life recalling memories of when she was younger.

I don’t have a digital image of Grandma-yet’ but I’ll create one for this story I didn’t know I was going to write, until writing the first sentence! 

I know we have our trouble in America, but when you compare us to other countries- it’s pretty damn nice country anyway you look at it. We have precious  freedoms another country can match.

I didn’t say God Bless America because I wanted everyone no matter who they were to be able to relate to the image and the meaning behind image.

 I’m Christian so I’ll always say God Bless America, but as an empowered lady I would love to see all of us all over the world worry less about religion & culture and focus more about just treating each other kindly and know everyone has a right to believe what they feel strongly about.

As long as they are not hurting you or anyone then let him believe it if they find solace and peace through it.

Uniting as living, breathing people who have the power to good-is my dream for not only America but for the world.

Written by Paulette Le Pore Motzko

When $65,000 a year for a drug is applauded : Pharmaceutical Prices & A Disabled Person’s Right To Live in Dignity with All Needs Met

When $65,000 a year for a drug is applauded

http://www.cnn.com/2017/04/03/health/prescription-drug-prices-public-opinion/index.html

Paulette Le Pore Motzko’s Note to Pharmaceutical Companies on Placing People First and Nevada’s Unfair Treatment of People with Epilepsy, Civil Rights & Disabilities 

I wish more pharmaceutical companies had more or a “Triple Win Attitude”: I Win, You Win & Society Wins. Huge multi million dollar companies need to keep ever present the real, flesh and blood people they are developing the drug to help.

They simply can function effectively as a business and still charge less  for the consumer. 

For instance, my medicine for epilepsy called Vimpat that I take is $20 a pill made by UCB. It cost nearly $2,300 a month along with my Tegretol that I take for a complex partial epilepsy. I have Nevada Medicaid and am on SSI, which allows you to make money and collect it, and pays less than SSDI-full disability.  (it also took two and a half years to win with the aid of a social security disability lawyer  too and I had to say goodbye to my alimony from the rocket scientist I was married to for 15 years to get that crappy $728 but my medical is covered. 

Yet after stating all those facts, the state of Nevada doesn’t think anyone who was diagnosed with epilepsy has a medical conditiom or termed disabled, even though the director at the DMV told me I will automatically get a disabled placard when I update my Nevada state ID.

 (I’m still trying to obtain a certified copy of my old marriage license to prove I’m Paulette Le Pore Motzko. That’s a $65 stupid document is so outrageous it is unbelievable. I’ve been divorced from him since 2001 and my name was legally changed in Garden Grove, California in 1986, when I got married.  I’m going to go talk to one of my friends who is a librarian and see if she can get me the silly document free because $65 is a lot of money to prove I’m who I am! I’ve been trying to get that document 3 times now and it is difficult since my CA ID expired on my birthday last August.

Nevada needs to spend more time educating their political leaders about things like crimehuman dignity, the pedestrian fatality rate and placing penalties on drunk drivers and their educating RTC and people who are public servants about various disabilities, NAMELY neurological ones like EPILEPSY. That would use everybody’s time in an effort worth expending time on.

This may be Nevada and it may have the worst weather in the United States, and 60 mile an hour-knock you on your ass dust storms, high fraud rates,  allergies that wont quit due to blowing dust, and vapes and casinos on every corner with few nonsmoking areas other than Starbucks.

But Nevada is still only one state in the USA it still is the United States of America. And as far as I’m concerned as far as I know, in the USA, we all have certain basic rights.

One of those rights is to be treated fairly. Denying people with epilepsy the right to use Paratransit and having the head Federal representative not know what epilepsy even is is a crime.  

That should be against the law and it probably is.

After after the grand negligence that happened to me regarding Paratransit  and the callousness and apathy on behalf of Senator Harry Reid’s office is disgusting.

 It doesn’t reflect great kindly on him.  The irony is Harry Reid can barely see and uses Paratransit himself, so you think he’d be the first understand the meaning of a doctor’s letter when a doctor writes for a patient to take a medication and says you need it to live, which mine has done since age 9.

You think he would understand as well as the governor,  how important it is to look after the safety of people with epilepsy and not allow them to be injured. I was.

 I was talking to Harry Reid about raising the cost of living index to $1200 a month for all people on SSI and SSDI. 

I still have pictures of the first place I lived in when I first moved here.  That horrid $728 a month buys nothing  in terms of living quality and your standard of life. All you have to do is  think and care and be a responsible person realize that along with all inflation and elevated prices going up, the cost of living index for all disabled people  hasn’t been raised in over 20 years.

SSI is $200 less than what California has per month. Who created an SSI (supplementary Social Security) of $728 anyway? A monkey with an abacus?  Everything needs to be updated  to reflect 2017 prices. Make the minimum BE $1000 for God’s sake! Round it up. Turn the insulting, impoverished amount in to something a human being can really spend, not just make due in the real world. $1200 is actually usable and workable  for the average person.

 Anybody who thinks that SSI and SSDI checks are handed on a platter they are not you are sadly mistaken.


Image from Pinterest.

Lawyer Bill LaTour won my case in Southern California and I can’t count all of the doctors I went to and specialists and career counselors and all the questions I had to answer and psychological assessments in order to finally present my case. Most who are disabled would rather be working. In the final hearing all of the doctors and the career counselor appeared in a small courtroom and they’re the judge asked me what my name was and after about 5 minutes he reviewed all the evidence presented by every one of the doctors that I had to see you over the course of a year and a half before he finally awarded me ssi. That took a mere five minutes and those were the only words that I other than that. 

You can’t sue the government but you can sue people who work for the government.  And one by one I will if I don’t get my Paratransit FOR MYSELF AND SET A PRECIDENT FOR ALL WHO HAVE EPILEPSY IN THE STATE OF NEVADA. 

After all, I’m the former President and founder of The Epilepsy Connection which was a grassroots organization in Orange County, California  that helped countless people in California and many other states, and three other countries who had no other resources whatsoever. I’m also the former director of the Epilepsy Foundation sub affiliate in Garden Grove, California years ago. 

In other words, I am a catalyst for positive change and I hope to  merge forces with other disabled people making us stronger as a united team.


 I’ve got arthritis in that left ankle that won’t go away, just as my dad was  just about paralyzed in a wheelchair from osteoarthritis  before he died several years ago.

After having a drop seizure- due to being out in 115 degree heat when I shouldn’t have been.  That because I was having problems but two idiot’s went against my epileptologist’s letter stating that. I think that’s a crime isn’t it? 

DAN HOWLAND AND JIM CHAMPOU, THE IDIOTS WHO DIDNT VALIDATE THAT DOCTOR’S LETTER AND THOUGHT DR. EVANGALISTA WROTE IT FOR THE FUN OF IT, INSTEAD TO PREVENT INJURY TO ME.

Maybe no lawyer in Nevada has wanted to take my case YET, IT IS A crime AND A  double crime since Dan Howell and told me he didn’t care about people with epilepsy to my face  and he said he didn’t care about learning about anything to do with them he liked being ignorant. After everything  hits the fan and people pay the price they should have paid a couple years ago but I wasn’t any kind of health condition  to be able  to press charges, I hope he’s fired  and not only that I hope charges are filed on him  for endangerment and that is endangering me.

I believe the max I can do is $10,000  in the state of Nevada for him personally and  also Jim shampoo $10,000 and also Tina Quigley, the head of RTC , who all she could say during our phone conversation was “uh huh” after I said anything.  In other words, she did nothing and could have been forced my Paratransit ID once suck it but she did not. That’s another $10,000.

 They put my life at risk because I was having drop seizures of time and that was written in the letter so that’s called personal injury and I with all the evidence that I can bring which is a hell of a lot of it I call it instant win.

It is the principle here. I am hoping I won’t need to and they will come to their senses. Maybe the  Governor can hear the whole sordid story and make it right trade she seemed like the most level-headed person in the most articulate intelligent person I’ve seen hold office in Nevada so far.

 I think Nevada has some disabled Senators who have disabled minds and need to greatly educate themselves about what all this abilities are an update themselves with 2017.

Civil rights and then do the educate themselves on disabilities that go far beyond physical ones in a wheelchair.

The statistics on disability is there are more people with invisible disabilities like epilepsy than those with more visible ones.

California was better with Paratransit by far.  I had Paratransit in California over 25 years and I come to the 1800’s Wild West High Desert of Nevada and here they turn me down. I called Paratransit once waiting 2 hours and after the two hours the lady said, ” oh didn’t you know? Just because you call Paratransit doesn’t mean it’ll show up!” 

Ignorance again.   

You shouldn’t be a leader in the state if you are igorant in the ways I have seen. Dina Titus, Head of Transportation had no desire to help me get what I was owed as a disabled American citizen.

Nevada Medicaid pays for my medicine now and I hope it always does because it’s the best combination I have ever been on in my now 55 years young.

 

 

Even all that being said Senator Reid doesn’t think I have a disability-isn’the that rediculous? 

I even sent Senator Reid pictures of my medicine and all the vitamins that I take and the doctor’s letter from my specialist who prescribes my medicine and the copy of my medical ID bracelet and he still didn’t think that I was disabled!

 Living in Nevada is like living in the wild west where they think they can do anything. The American with Disabilities Act is something that I know all about  and because I was turned down for Paratransit here I could sue every senator in the entire State and when  because my civil rights were violated and I broke my left ankle as a result of having a drop seizure a year ago and was nearly in power chair after! Was I disabled enough for you then Nevada  huh 7 read  the governor ? Is that what you want to but everybody Wheelchairs and that’s the only kind of stability you think exist in this world ? Wake up  you need to get your head examined and go look at the medical book and read it all of this abilities that exist in this world there quite a lot of them  we have a lot of components to our bodies not just a physical body  without your neurological system you’re nothing you can’t write you can’t speak you can’t do anything.

I now have arthritis in that left ankle, which makes might a personal injury case that I didn’t want come into the state I just wanted a place to live it was cheap that’s it I didn’t come here for the gambling  I don’t drink I don’t smoke I don’t do drugs and I don’t gamble why did I come here for cheap rent that’s it hat’s part of living in Nevada is not something I like but it’s also against my civil rights too. 

I’ll be talking to the governor of Nevada this year about all of those issues as well as others that affect everyone or just same old and about raising the cost of living index for all people who are disabled to something that allows them to live in dignity, which the $728 a month does not.

I want to see that all people can afford tm what they need to keep them alive. 

Hear that pharmaceutical companies? 

Remember the human element. 

Remember why you’re developing the medicine in the first place.

 What good  is a fantastic medicine with a high efficiency rate and the low side effect rate and a huge success rate if the patients cannot afford it? I’m asking you that question mark I was made a rocket scientist for 15 years and I’m fairly bright that’s not even logical is it to make the price outlandish.

If drugs are so outrageously priced limiting who can take them, it defeats the purpose why the drug was ever created.

 I wish the scientist who developed the drugs could price the drugs because then they would be priced at something reasonable that makes sense. 

Because people who are scientists creating these compounds to help people would never charge people outrageous prices because they’re more humanitarian in spirit than the simply sales reps promoting the products getting huge commissions driving company cars!

 Let the pharmacology medicine developers help set a price that is more accurate.

 I saw pharmaceutical reps every time I went into one of my neurology offices in Orange off La Veta when I was married years ago.  I think what they do should be against the law because they’re giving doctors Kickbacks to promote drugs. because of that, doctors are  not looking at to the best needs of the patient. The Pharmaceutical reps  are allowed to  dangle money in front of a doctor’s faces and saying over here I’ll give you this money -a bribe.

How in the hell can a good doctor think straight  with the ” Wheeler Dealers” walking around dangling incentives.

Pharmaceutical companies remind me of real estate companies in California. Everybody is so greedy that they have to make “over profit” aking for way more than is affordable for most everyone except millionaires. 

 Medicine companies: Remember the people FIRST. Without people in this world you have nothing. Nothing but dust and a bunch of chemicals a test tube that people NEED.

Written by Paulette Motzko on April 5th 2017 at 12:48 p.m. 

This is story was aired on Totally Inspired Mind: Where Posititive Minds Congregate and Beautiful Soul Shine.

TotallyInspiredMind.com

I created the following document on my Galaxy Note 4 Phablet and the edits are coming in on my Samsung S2 tablet. My phablet  overheated just like I do when I even think about the things that I’ve been through for no good reason.  I almost was history in this town so rather than be history I’m going to make history instead, making it better for everyone.








Edited  April 5th 2017 at 3:36

Written by Paulette Le Pore Motzko 

Obamacare is the Law of the Land: CNN News. Commentary by Paulette Motzko

Ryan: Obamacare is the law of the land

http://www.cnn.com/videos/politics/2017/03/24/paul-ryan-on-obamacare-mobile-orig-llr.cnn

All I can say about this is “thank God”, because everyone was so anxious to rip a Landmark Insurance care system that was helping tons of people, including myself with epilepsy – a pre-existing illness not covered by any insurance ever in history until Obamacare.

 Trump was so anxious to rip apart a system they gave people life literally and that includes cancer victims, people on dialysis and other very serious illnesses and disabilities. Obamacare covers real needs that are not something you take lighthearted.

 Optimally, when people’s lives are at stake- great thought is involved before enacting a policy that could adversely affect countless people.

 I was really disheartened by the way congress was handling things and so happy that the prayers and all of the things which I’ve been sending out if are heard.

Nobody  was coming up with what they were going to be replacing Obama Care with. 

You always create the replacement first before you yank the program out of everybody’s hands.

It was ridiculous how they were handling it. 

I am very happy that the popular vote won and nobody wanted to take the very needed program away.

Come on Congress! Use your brains all- of your brains together. I was married to a rocket scientist and you never ever destroy something that is working ever!

I don’t know what Republicans do but Jesus Christ have a heart!  Countless people who rely on this program to keep them alive! That is not kidding and I’m not exaggerating one little bit.

Republicans get your heads out of the sand and wake up to the reality and do the smart, responsible thing, the intelligent thing the triple winning things that shows you are human beings who care about the world and not just yourselves.

Replace Obamacare with a program that supersedes it. 

If you can do that go ahead with the other program. Until then, don’t you even talk about taking it away or every disabled person in the United States will come knock on the Capitol building  door and picket.  after all, you can’t sue the federal government but you can sue people who work for the government and if people died as a result of losing Obamacare they have a right to sue every person that signed the bill to do it. And that is a fact look it up.

That just goes to say and it goes right along with everything else Trump is done. Trump is a Loose Cannon as far as I’m concerned; he doesn’t think before he does anything he doesn’t care about the big picture.

Trump just wants to be a dictator like Hitler and he doesn’t care about people or the big picture Community or people’s lives period just wants to see his name in the lights like the god-forsaken truck building it’s down in downtown Las Vegas and I just looked at it and I’m sickened by it.  you see people can have lots of money but if they’re horrid human being they’re not really successful. Trump trump is apathetic to human beings and their suffering. He just wants to walk on everybody he can so he can try to make it to the top. That parallels everything that he’s done in business and in his personal life. I hope he’s replaced with someone who’s a human being soon. I hope things escalate to the point where he’s actually impeached, which I would help make that happen obtaining signatures.

I would like to see our president represent the ideals that America is famous for including freedom for all people, any race color and create and that is not what Trump represents.

Written by Paulette Motzko Saturday March 25th 2017 at 7:14 a.m.

Your Epilepsy News Resource

http://paper.li/PollyMotzko/1356861050#/

More people have epilepsy than you are aware. Many people you know have it but they just wanted to tell you later, for fear that you won’t be their friend or something.

All you need is a blow on the head, high fever, convulsions, severe enough infection or a coma and you could acquire it. I had all those things and nearly died before my second birthday. 

In other words, everyone is susceptible epilepsy under the right circumstances.

I was diagnosed with complex partial epilepsy when I was 9 years old, but I had simple partial seizures when I was four but didn’t know how to describe them. Many seizures are difficult to describe, because they don’t feel like pain, but rather a sensation.

I will always be a spokesperson for those who have the disorder and care about those who disabled because of my experiences as now a mature young minded senior of 55.

I hope to make this newsletter make money (monetize it) this year and work with CURE Citizens United for Research in Epilepsy to use their 501C3 tax status and accept private nations from people and foundations and companies giving them banner ads.

Say prayers all this, with my tenacity becomes a reality.  I have how do you touch bases with someone in marketing from cure already and so the wheels are turning in a very positive direction.

Paulette Le Pore Motzko is the creator and editor of Your Epilepsy Resource Guide and in the past the founder of  The Epilepsy Connection which was a grass roots organization in Orange County in the late 1990’s and former Director of the sub- affiliate in Orange County, California of the Epilepsy Foundation.

Your Epilepsy News Resource for Valentine’s Day 2017

http://paper.li/PollyMotzko/1356861050#/

There are 198 contributors in today’s issue of Your Epilepsy News Resource. 

More people have epilepsy than you know. They probably just afraid to tell you and disclose the truth for fear that you would look differently upon them.

Paulette Le Pore Motzko is the creator and Editor of Your Epilepsy News Resource.

Read. Learn. Empower Yourself and Others With Knowledge. 

Knowledge is Power. 

Written by Paulette L Motzko.

Photos created by Paulette Motzko

Me at The Texas Station Hotel and Casino last night. 

Photography by my friend Miss V.

Photo editing by Paulette Motzko

February 14th, 2017