When $65,000 a year for a drug is applauded : Pharmaceutical Prices & A Disabled Person’s Right To Live in Dignity with All Needs Met

When $65,000 a year for a drug is applauded

http://www.cnn.com/2017/04/03/health/prescription-drug-prices-public-opinion/index.html

Paulette Le Pore Motzko’s Note to Pharmaceutical Companies on Placing People First and Nevada’s Unfair Treatment of People with Epilepsy, Civil Rights & Disabilities 

I wish more pharmaceutical companies had more or a “Triple Win Attitude”: I Win, You Win & Society Wins. Huge multi million dollar companies need to keep ever present the real, flesh and blood people they are developing the drug to help.

They simply can function effectively as a business and still charge less  for the consumer. 

For instance, my medicine for epilepsy called Vimpat that I take is $20 a pill made by UCB. It cost nearly $2,300 a month along with my Tegretol that I take for a complex partial epilepsy. I have Nevada Medicaid and am on SSI, which allows you to make money and collect it, and pays less than SSDI-full disability.  (it also took two and a half years to win with the aid of a social security disability lawyer  too and I had to say goodbye to my alimony from the rocket scientist I was married to for 15 years to get that crappy $728 but my medical is covered. 

Yet after stating all those facts, the state of Nevada doesn’t think anyone who was diagnosed with epilepsy has a medical conditiom or termed disabled, even though the director at the DMV told me I will automatically get a disabled placard when I update my Nevada state ID.

 (I’m still trying to obtain a certified copy of my old marriage license to prove I’m Paulette Le Pore Motzko. That’s a $65 stupid document is so outrageous it is unbelievable. I’ve been divorced from him since 2001 and my name was legally changed in Garden Grove, California in 1986, when I got married.  I’m going to go talk to one of my friends who is a librarian and see if she can get me the silly document free because $65 is a lot of money to prove I’m who I am! I’ve been trying to get that document 3 times now and it is difficult since my CA ID expired on my birthday last August.

Nevada needs to spend more time educating their political leaders about things like crimehuman dignity, the pedestrian fatality rate and placing penalties on drunk drivers and their educating RTC and people who are public servants about various disabilities, NAMELY neurological ones like EPILEPSY. That would use everybody’s time in an effort worth expending time on.

This may be Nevada and it may have the worst weather in the United States, and 60 mile an hour-knock you on your ass dust storms, high fraud rates,  allergies that wont quit due to blowing dust, and vapes and casinos on every corner with few nonsmoking areas other than Starbucks.

But Nevada is still only one state in the USA it still is the United States of America. And as far as I’m concerned as far as I know, in the USA, we all have certain basic rights.

One of those rights is to be treated fairly. Denying people with epilepsy the right to use Paratransit and having the head Federal representative not know what epilepsy even is is a crime.  

That should be against the law and it probably is.

After after the grand negligence that happened to me regarding Paratransit  and the callousness and apathy on behalf of Senator Harry Reid’s office is disgusting.

 It doesn’t reflect great kindly on him.  The irony is Harry Reid can barely see and uses Paratransit himself, so you think he’d be the first understand the meaning of a doctor’s letter when a doctor writes for a patient to take a medication and says you need it to live, which mine has done since age 9.

You think he would understand as well as the governor,  how important it is to look after the safety of people with epilepsy and not allow them to be injured. I was.

 I was talking to Harry Reid about raising the cost of living index to $1200 a month for all people on SSI and SSDI. 

I still have pictures of the first place I lived in when I first moved here.  That horrid $728 a month buys nothing  in terms of living quality and your standard of life. All you have to do is  think and care and be a responsible person realize that along with all inflation and elevated prices going up, the cost of living index for all disabled people  hasn’t been raised in over 20 years.

SSI is $200 less than what California has per month. Who created an SSI (supplementary Social Security) of $728 anyway? A monkey with an abacus?  Everything needs to be updated  to reflect 2017 prices. Make the minimum BE $1000 for God’s sake! Round it up. Turn the insulting, impoverished amount in to something a human being can really spend, not just make due in the real world. $1200 is actually usable and workable  for the average person.

 Anybody who thinks that SSI and SSDI checks are handed on a platter they are not you are sadly mistaken.


Image from Pinterest.

Lawyer Bill LaTour won my case in Southern California and I can’t count all of the doctors I went to and specialists and career counselors and all the questions I had to answer and psychological assessments in order to finally present my case. Most who are disabled would rather be working. In the final hearing all of the doctors and the career counselor appeared in a small courtroom and they’re the judge asked me what my name was and after about 5 minutes he reviewed all the evidence presented by every one of the doctors that I had to see you over the course of a year and a half before he finally awarded me ssi. That took a mere five minutes and those were the only words that I other than that. 

You can’t sue the government but you can sue people who work for the government.  And one by one I will if I don’t get my Paratransit FOR MYSELF AND SET A PRECIDENT FOR ALL WHO HAVE EPILEPSY IN THE STATE OF NEVADA. 

After all, I’m the former President and founder of The Epilepsy Connection which was a grassroots organization in Orange County, California  that helped countless people in California and many other states, and three other countries who had no other resources whatsoever. I’m also the former director of the Epilepsy Foundation sub affiliate in Garden Grove, California years ago. 

In other words, I am a catalyst for positive change and I hope to  merge forces with other disabled people making us stronger as a united team.


 I’ve got arthritis in that left ankle that won’t go away, just as my dad was  just about paralyzed in a wheelchair from osteoarthritis  before he died several years ago.

After having a drop seizure- due to being out in 115 degree heat when I shouldn’t have been.  That because I was having problems but two idiot’s went against my epileptologist’s letter stating that. I think that’s a crime isn’t it? 

DAN HOWLAND AND JIM CHAMPOU, THE IDIOTS WHO DIDNT VALIDATE THAT DOCTOR’S LETTER AND THOUGHT DR. EVANGALISTA WROTE IT FOR THE FUN OF IT, INSTEAD TO PREVENT INJURY TO ME.

Maybe no lawyer in Nevada has wanted to take my case YET, IT IS A crime AND A  double crime since Dan Howell and told me he didn’t care about people with epilepsy to my face  and he said he didn’t care about learning about anything to do with them he liked being ignorant. After everything  hits the fan and people pay the price they should have paid a couple years ago but I wasn’t any kind of health condition  to be able  to press charges, I hope he’s fired  and not only that I hope charges are filed on him  for endangerment and that is endangering me.

I believe the max I can do is $10,000  in the state of Nevada for him personally and  also Jim shampoo $10,000 and also Tina Quigley, the head of RTC , who all she could say during our phone conversation was “uh huh” after I said anything.  In other words, she did nothing and could have been forced my Paratransit ID once suck it but she did not. That’s another $10,000.

 They put my life at risk because I was having drop seizures of time and that was written in the letter so that’s called personal injury and I with all the evidence that I can bring which is a hell of a lot of it I call it instant win.

It is the principle here. I am hoping I won’t need to and they will come to their senses. Maybe the  Governor can hear the whole sordid story and make it right trade she seemed like the most level-headed person in the most articulate intelligent person I’ve seen hold office in Nevada so far.

 I think Nevada has some disabled Senators who have disabled minds and need to greatly educate themselves about what all this abilities are an update themselves with 2017.

Civil rights and then do the educate themselves on disabilities that go far beyond physical ones in a wheelchair.

The statistics on disability is there are more people with invisible disabilities like epilepsy than those with more visible ones.

California was better with Paratransit by far.  I had Paratransit in California over 25 years and I come to the 1800’s Wild West High Desert of Nevada and here they turn me down. I called Paratransit once waiting 2 hours and after the two hours the lady said, ” oh didn’t you know? Just because you call Paratransit doesn’t mean it’ll show up!” 

Ignorance again.   

You shouldn’t be a leader in the state if you are igorant in the ways I have seen. Dina Titus, Head of Transportation had no desire to help me get what I was owed as a disabled American citizen.

Nevada Medicaid pays for my medicine now and I hope it always does because it’s the best combination I have ever been on in my now 55 years young.

 

 

Even all that being said Senator Reid doesn’t think I have a disability-isn’the that rediculous? 

I even sent Senator Reid pictures of my medicine and all the vitamins that I take and the doctor’s letter from my specialist who prescribes my medicine and the copy of my medical ID bracelet and he still didn’t think that I was disabled!

 Living in Nevada is like living in the wild west where they think they can do anything. The American with Disabilities Act is something that I know all about  and because I was turned down for Paratransit here I could sue every senator in the entire State and when  because my civil rights were violated and I broke my left ankle as a result of having a drop seizure a year ago and was nearly in power chair after! Was I disabled enough for you then Nevada  huh 7 read  the governor ? Is that what you want to but everybody Wheelchairs and that’s the only kind of stability you think exist in this world ? Wake up  you need to get your head examined and go look at the medical book and read it all of this abilities that exist in this world there quite a lot of them  we have a lot of components to our bodies not just a physical body  without your neurological system you’re nothing you can’t write you can’t speak you can’t do anything.

I now have arthritis in that left ankle, which makes might a personal injury case that I didn’t want come into the state I just wanted a place to live it was cheap that’s it I didn’t come here for the gambling  I don’t drink I don’t smoke I don’t do drugs and I don’t gamble why did I come here for cheap rent that’s it hat’s part of living in Nevada is not something I like but it’s also against my civil rights too. 

I’ll be talking to the governor of Nevada this year about all of those issues as well as others that affect everyone or just same old and about raising the cost of living index for all people who are disabled to something that allows them to live in dignity, which the $728 a month does not.

I want to see that all people can afford tm what they need to keep them alive. 

Hear that pharmaceutical companies? 

Remember the human element. 

Remember why you’re developing the medicine in the first place.

 What good  is a fantastic medicine with a high efficiency rate and the low side effect rate and a huge success rate if the patients cannot afford it? I’m asking you that question mark I was made a rocket scientist for 15 years and I’m fairly bright that’s not even logical is it to make the price outlandish.

If drugs are so outrageously priced limiting who can take them, it defeats the purpose why the drug was ever created.

 I wish the scientist who developed the drugs could price the drugs because then they would be priced at something reasonable that makes sense. 

Because people who are scientists creating these compounds to help people would never charge people outrageous prices because they’re more humanitarian in spirit than the simply sales reps promoting the products getting huge commissions driving company cars!

 Let the pharmacology medicine developers help set a price that is more accurate.

 I saw pharmaceutical reps every time I went into one of my neurology offices in Orange off La Veta when I was married years ago.  I think what they do should be against the law because they’re giving doctors Kickbacks to promote drugs. because of that, doctors are  not looking at to the best needs of the patient. The Pharmaceutical reps  are allowed to  dangle money in front of a doctor’s faces and saying over here I’ll give you this money -a bribe.

How in the hell can a good doctor think straight  with the ” Wheeler Dealers” walking around dangling incentives.

Pharmaceutical companies remind me of real estate companies in California. Everybody is so greedy that they have to make “over profit” aking for way more than is affordable for most everyone except millionaires. 

 Medicine companies: Remember the people FIRST. Without people in this world you have nothing. Nothing but dust and a bunch of chemicals a test tube that people NEED.

Written by Paulette Motzko on April 5th 2017 at 12:48 p.m. 

This is story was aired on Totally Inspired Mind: Where Posititive Minds Congregate and Beautiful Soul Shine.

TotallyInspiredMind.com

I created the following document on my Galaxy Note 4 Phablet and the edits are coming in on my Samsung S2 tablet. My phablet  overheated just like I do when I even think about the things that I’ve been through for no good reason.  I almost was history in this town so rather than be history I’m going to make history instead, making it better for everyone.








Edited  April 5th 2017 at 3:36

Written by Paulette Le Pore Motzko 

Stages of Our Lives Pass Like Changing Seasons by Paulette Le Pore Motzko New Version 

Above images created by Paulette Le Pore Motzko, Copyright 2016

Written by Paulette Le Pore Motzko.

Copyright February 2017

I accidentally erased the link that was on here going to a blog post called “Stages of Change”, and prior to finding the blog post in the wee hours this morning, I had the idea to write this.

I thought the entire story would be written in an hour or by about 3 p.m. now yesterday afternoon, Las Vegas, NV time. It’s 4:00 a.m. February 28th,  2017 and with a Pentatonix Concert on Neflix playing,  I have been embellishing the post with more images that I feel tell part of the story too and modifying what I wrote.

I hope you will enjoy it. Yesterday was my day to “Get Absorbed in The News Day” writing commentaries. I am an empath in many ways, and can only handle hearing about the news of the world every few days. I would never get anything done if I did otherwise. All I have to do is run into one god-forsaken story about Trump, who’s Triple loser in my book, especially after hearing he made fun of a disabled person. Anyone that would make fun of any kind of disabled person is a pathetic human being. Trump’s animalistic, racist and self demeaning behavior boggles my mind. Yes,  I know he tries to demean other people but all he succeeds and doing it’s just lowers himself to increasing new levels of mediocrity.  I want him impeached to preserve the integrity of the United States as an American citizen. He simply makes us look bad in the eyes of other nations.

Enough of my political view points, that were not in the original post,  but I don’t stand alone in my feelings. 

One of my golden rules in life is to be genuine and totally authentic. People respect that. When it comes to followers and buying followers  I don’t . All mine are real and represent real, living, breathing , wonderful people  who I have impressed somehow, or I’ve inspired, or empowered, made laugh, entertained,  or they look forward to something that I write, my original images,  or they like just me in general and my persona. My followers are real people who follow me  because I am REAL and put on no pretenses. Anything other than that is just fake in my book, and I’m working on two books currently.

 I get asked all the time you want to buy some followers they say why? I have my own real ones from hard work  writing what I feel is good content. I think any industry they call that  organic. As a writer I call it smart because it’s how I know what people LIKE. IF everything is fake and contrived, it doesn’t reflect anything real but it’s just a mere illusion of popularity

  When ever I see Trump’s face, one word comes to mind- impeachment. I sincerely hope that happens so the disasters and hate crimes nationwide he instigated can end. The United States needs to think of our progress rather than regression. I wish Trump wasn’t really and instead a really bad nightmare ,  nut we all wake up and he’s still there unfortunately!
 Like many of my stories, posts and pictures; they are going through a creative evolutionary process, contantly changing or improving, like their creator me! We all change everyday just a little bit, even though we can’t see the changes, we still do. The great thing about that is it we all have a say in how we change,  and in what ways we change. You just have to want to change then catapult your want with action to make it a reality.

Above photo taken by my friend Martha the general manager of The Canonita-Mexico City Soul Food. Photo editing by Paulette Motzko.

Just like the seasons are now changing from winter to spring, this article is changing with every word I write. 

I hope the finished product has you look at not only me in a new way, but life in general in a new way and directs you to a newfound realization of the power you possess in it.

Embrace change. It us the only constant in life.  Those who do the best in life ADAPT.

Much like a surfer on a surfboard riding the wave, those that master the “Art of Living”, ride the wave called LIFE. We can learn from the quick reflexes of the surfer, adjusting what we do in correlation to what’s the way  was coming our way.

Above image photography by Paulette Le Pore Motzko, PLM Studios, 2017

Photography by Leonardo Valencia. Digital Arts by Paulette Motzko. 

Copyright May 2016

Above High definition wallpaper image from Zedge.com

When I was younger I hadn’t discovered my full potential yet and didn’t see the world from a big picture vantage point yet. That was to be uncovered and made visible over time. I was a very sick, misunderstood kid that grew up in the 60’s, at a time before the time “bullying” was invented or before people cared to do something about it at least. 

My nanny came to live with us when I was nine, the same age I was diagnosed with epilepsy. The piano she brought with her would soon become my best friend. It took until high school at 14 to be invented for me to know what size your freedom was.  Until the time kids were just too mean spirited stupid to ever give me a chance as human being, let alone as a friend.  I wrote music on that Henry Ford. Miller piano and read lots of cookbooks and passed the time figuring out what I was going to make and cook, analyzing recipes as though it were a novel envisioning  what I’d make  when I grew up and the parties that I would have and how awesome it would be…….

Image created by Paulette Motzko, Copyright 2016

Every day pray and meditate as your 1st thing in the day.  Connect with your Omnipotent Power of the Universe asking for Wisdom and Guidance. I AM CHISTIAN BAPTIZED CATHOLIC, BUT I AM SPIRITUAL IN NATURE. No matter what your faith, place that part of you first and you cannot be steered wrong.


Above image created by Paulette Motzko, Copyright October 2016. Since that time I have a thousand more followers on 

Totally Inspired Mind

Light an aromatherapy candle and find out how you can tap into what’s inside your SOUL.

 I have always found lighting a candle is a way to connect to a hidden, very special light planted in my soul. 

Chances are, if you try it, you will discover it too.

Before you know it, when you start connecting with your Spiritual Source, you’ll find a light that you can protect outward at the world, and the world will be brighter as result of it. If your light shines brilliantly it’s own special way, the light will never go away as long as the World Turns. If you bring something to the world nobody has ever seen before that has great merit,  you’ll be memorable enough that your memory and good you did will “shine” like the aurora borealis.

The older I get the more I focus on the good I can give rather than what I can get and options and opportunities open like flowers in the Spring.


Photographer Leonardo Valencia. Digital Arts by Paulette Motzko.



Above wallpaper image from Zedge.com



Stay centered.

Keep your focus on what matters.

Don’t do something just because everybody else is.

Have your own viewpoints and own them.

Above 3 images created by Paulette Motzko, Copyright 2015, 2016 and 2017.

Image with diary and old fashioned fountain pen by Zedge.com.

Write every day, even if you are the only one who reads what you write. 

Remember:  “With a pen,  paper and an idea, I have the world!”

Writing is a way you can connect with your innermost self, your hopes and dreams unfurl as you hold that pen in your hand, or as you type. Whichever method helps you connect better and be more prolific, do it! 


Go after what you really want in life early and do what you, and nobody else was meant to do.

Above image of The Venetian Trio who are doing what they were meant to do. That reflects in every song they play.

The above image of Norman Vito, pianist at The Bellagio Petrussian Caviar Bar. He is ” in his element at the piano, as though he’s where he is was destined to be.”

Photographed and created by Paulette Motzko, PLM Studios, February 2017

Keep Supporters of Your Dreams Close To You

Photography by Leonardo Valencia, of Paulette Motzko holding one of her Nikons.

Keep Negative and Hurtful People Away From You. You owe it to yourself to have a happy and productive life. Negative people are like a ball and chain who get their enjoyment from dragging you down because they don’t have the initiative, talent or ideas that you do. Repel them like water beads on Vaseline.

Above image from Pinterest, from Girlheartscamera.com. Quote by Oprah Winfrey. 

Water the Garden of Your Dreams Daily by working on each Project.

Listen to your inner voice, or intuition because it is always right.

Take time for your routine that keeps you most healthy.

If music is a passion of yours, sing a song or put some music out in the universe making your contribution to making a more harmonious world.

Above image photography by Rosie Emberton. Digital Photo Arts by Paulette Le Pore Motzko.

Life is a balancing act composed of spiritual time, personal time, work time, leisure time and whatever other classifications you when to add.


Take time to do self-introspection so you can see how far you’ve come and how far you’ve gone to appreciate Where You Are now.

 Mentor others  so you can help others carry the torch and do things easier than you once did.
Donate your time then to philanthropic things to give back to the world and it will give you more back than you ever dreamed.
Make the most of where you are now. Use the tools you have now, they don’t have to be the best tools but they’re the tools we can afford and use them maximize them and save up for whatever equipment you need to do your job well.
Don’t take the first no for an answer you hear. If you’re not getting what you want with your company go to the corporate level and I guarantee you’ll get what you want.
Aim for your goals like a GPS guidance system guides a Delta rocket to outer space


    I hope you have reading this as much as I have enjoyed sharing my 55 year old wisdom and 20 year old heart with you! 

    Maybe God had in mind me destroying the original post, so I could write this one which is my own, and my brainchild. 

    Written by Paulette Le Pore Motzko

    February 27th 2017 at 1:55 p.m.

    Updated February 27th 2017 at 3:19 p.m. and illustrations added 6:38 p.m.

    Updated February 28 2016 at 5:26 a.m.

    Your Epilepsy News Resource for Valentine’s Day 2017

    http://paper.li/PollyMotzko/1356861050#/

    There are 198 contributors in today’s issue of Your Epilepsy News Resource. 

    More people have epilepsy than you know. They probably just afraid to tell you and disclose the truth for fear that you would look differently upon them.

    Paulette Le Pore Motzko is the creator and Editor of Your Epilepsy News Resource.

    Read. Learn. Empower Yourself and Others With Knowledge. 

    Knowledge is Power. 

    Written by Paulette L Motzko.

    Photos created by Paulette Motzko

    Me at The Texas Station Hotel and Casino last night. 

    Photography by my friend Miss V.

    Photo editing by Paulette Motzko

    February 14th, 2017

    I, for one, love strength, daring, fortitude. I do not want people to kill the fight in them; I want them to fight for the right things. Helen Keller

    Helen Keller Says: “I, for one, love strength, daring, fortitude. I do not want people to kill the fight in them; I want them to fight for right things.”

    One of the earliest known pictures of Helen Keller with her extraordinary teacher Anne Sullivan. She was my role model since I was 9 years old diagnosed with epilepsy. I discovered her and playing piano I’m cooking, and writing, it is very early age and very pivotal age in my life. I realized after reading what she did dealt with what she had to deal with that I could do anything I put my mind to do, if I only wanted to badly enough.

    Later picture of Helen Keller and Anne Sullivan,  also from Pinterest, . Photographer unknown.

    Anne Sullivan brought Enlightenment to Helen Keller’s life. Before Anne Sullivan entered Helen Keller’s dark and Silent world, she didn’t understand why she was there and didn’t understand that everything had a meeting and everything had a name in this world. I suggest you read any of the books that Helen Keller wrote. Your life and your attitude will be forever changed. She was brilliant and it was Anne Sullivan that brought out that brilliance hiding like a tulip waiting to bloom buried deep in the Earth.

    https://play.google.com/store/apps/details?id=com.helen.keller.daily

    From Helen Keller daily.

    Image’s from Pinterest, photographers unknown.

    Written and Compiled by 

    Paulette Le Pore Motzko.

    January 17th 2017. 8:34 a.m.

    Obama: Declared Trump ‘Unfit’ Equal Rights, Leadership vs Dictatorship & Disabled Rights in Nevada by P.L Motzko)

    Obama: Trump ‘unfit’ for presidency
    http://www.cnn.com/2016/08/02/politics/obama-says-trump-unfit-for-presidency/index.html

    Hooray! Finally Obama says exactly what I have been writing and saying all week.

    I hope this is the first step to taking very very strict action of for the first time in history deeming someone unfit to be the president of United States.

    It’s not a free chair. You have to earn that chair was there ever a very well-thought-out word you say that shows what kind of person that you are. People aren’t hiring a name to be the president they’re hiring a human being with values.

    If you’ve proven that you’ve alienated every type of minority there is, including women , which for the most part in this world are still a minority, and you’ve insulted even your Republican teammates-what’s coming for us as a nation with Trump as dictator?
    Doesn’t take a rocket scientist like my ex-husband to figure that out!

    Trump would not be a leader. He would be a dictator just like Hitler was and I know it. In my heart of hearts I know that. When you’ve lived over five decades you develop insights, wisdom and have an inner voice and intuition about things. If you really listen to it, you will be dead-on right about everything.

    There’s a difference between a leader and a dictator. A true leader is a Visionary. A leader can bring out the best in everyone and see they’re true hidden potential, even when they can’t even see it themselves.
    A true leader hopes to work in a synergistic fashion with other leaders, and not compete but work with them creating a triple win which is- I win, you win, Society wins at large. I learned that philosophy what I was in the Voluntary Leadership Program at Chapman University where I graduated in 1997 the top of my class. I’m very proud of that because it started with a vision, and an extraordinary idea and it ended with reality.

    Trump would be a dictator and we would smash everything and everybody that’s in his way. He would look at people as obstacles and he would not behave in an ethical fashion. Trump’s fashion would go against everything that America stands for. We would all be subservient to him.

    I was married to a real rocket scientist for 15 years and much of his logical thinking rubbed off on me. In the best of timed my ex-husband and I got along really well because we were both could discuss any topic there was in the world. Even though I was disabled my ex-husband didn’t care because he saw my abilities and he saw what I could do.

    In 2016 we as a nation have become a very sophisticated people. We could work out almost anything we would ever want to work out with any country there is- if we only wanted to . We have to want to more than anything in the world though.

    In order to pave New Roads to a more promising future for all of us in the United States. We need to elect a president who is an excellent speaker and who can articulate all of our wishes as a unified people. Our president must be an excellent communicator. Trump is the opposite of that. He’s the polar opposite of an articulate communicator. Trump is a triple loser. The only element he comprehends is domination at any cost. All of a sudden the triple winning scenario goes out the window and what you’re left with is Trump wins, Trump wins, and society loses.

    One of the things I’ve always wanted to do is be a speech writer or a writer for a politician I endorsed or The United Nations to help unite us as a world. With very carefully chosen words we can avoid war and create positive Alliances. We could work towards a more promising future it. It just takes work and silence and thought.
    It means you have to sit down and you have to be in a quiet room and you have to have no TV blaring and you have to just think.

    Changing the subject but still on the train of thought of equality and civil rights:

    I haven’t had a TV in over 3 years due to the state of Nevada lowering my SSI check over $250 a month, and I am on a payment plan with NV Energy to keep my electric on!
    That’s not living in dignity and far from it. I gave up alimony for this just to have my medical covered?

    People who collect subsidized income would rather be working, and most of all have good health. They would also like to not be discriminated against because of their disabilities and appreciated for whatever intelligence, abilities, and skills they possess. In the real world that’s not how it works. I was given a 50,000 year job by Edison in California then when they heard that I use Paratransit Access they said “oh we won’t be needing you!” I swear to God that happened. I have seen it time and time again so maybe some people like to sit around eating bon-bons all day watching a TV set but that just ain’t me! I placed education first and I want to be hired for my abilities and paid accordingly. Once I get Paratransit I will be able to make more money and be able to make it get to jobs faster and not in debilitating 115 degree heat.
    It’s counterproductive to anything that I’m trying to do in this state.

    This story will be given to Senator Harry Reid and one of the local newspapers here.

    I say it like it is and I’m not ashamed to say that. People respect me for that.
    They expect me to make $14,000 a year on top of the joke of a monthly check of $728 and collect the below poverty wage figure. Sure SSA. You try and earn a living with half the people you deal with are drug addicts, drunks, or just flakes. I am in the process of raising the cost of living index for all people on SSI, SSDI veterans and all people who are disabled who are affected. Inflation increased but the cost of living index for all the disabled people who rely on that for life and survival. It has not been raised in over 20 years. Not cool and it’s about time. Whoever created the figure $728 needs their head examined. That doesn’t even cover the rent. doesn’t cover rent and utilities. I’m in the process of meeting with Senator Harry Reid and I think I will be the first Disability Advocate Nevada has ever had.
    I want to see that all people who are disabled live in dignity.

    After all, I should know about civil rights I had my freedom taken away from me moving to Nevada. They told me that level if he’s not a disability it’s not worth Paratransit you’re not disabled enough that’s what I said that’s what they said amazing isn’t it illegal to cancel or specially when they denied my doctor’s letter stating I needed Paratransit and I haven’t driven for over 25 years to do it almost being killed in a car accident; they turned me down. Makes no sense. It’s called ignorance and stupidity. That ignorance and stupidity cost me a broken ankle and toes and one year later I now have arthritis and then ankle. 3 people were involved with that moronic decision to play God and ignore a neurologists doctor’s order stating that I had heat-sensitive epilepsy and I’ve had Paratransit for 25 years in the state of California with Access. Those people will be sued in civil court at a minimum of $10,000 a piece by me because I suffered because they were stupid and arrogant and the worst part apathetic and callous they didn’t care if I got injured or not but I did.

    I will go down in history as being the first disabled white woman who came to a dust bowl of a town to live and dignity and peace and instead got didn’t find that.

    Nevada is the worst state for disabled people in the world. If you’re disabled don’t come to Nevada. I will say that over and over-don’t come to Nevada if your disabled- especially if you have Mobility impairments because there are tons of people who should be in special homes they should have a personal care attendant with them and they don’t.
    Yesterday I fed and helped a totally blind man who was walking the streets feeling this way the whole way with a cane and he could barely get inside the Jack in the Box that I happen to be at.

    When I was on the phone with my friend I looked up at him and he went to my table and asked for two more quarters because he almost had enough to get a hamburger. This was a veteran who served in the military and because of a bomb he had one of his eyes blown out and the other one with glaucoma! It makes me sick how America treats our military in this country and I want to see that change. The Veterans Administration did a lousy job taking care of my dad when he was alive and obviously is doing a lousy job on the totally blind veteran walking the busy streets with a cane. I do good walking around this state and I have eyes and I can see!

    Cars will kill you in this town and they don’t care that you have the right away because no one makes anybody accountable. That’s the problem with Nevada is life is not sacred, disabled people don’t matter here as with the ADA laws of CA. That’s why they’re so many pedestrian fatalities-ALL because the people who run This Dusty Hot Town seem to think it’s okay.
    It’s not okay. Manslaughter will never be LEGAL and life is sacred and a car will always win against a frail human body.

    I stopped what I was doing and I was horrified when I saw this veteran, of which I know is full name, when just might go to the Veterans Administration myself and say what are you doing for this poor guy? Find out who is case worker is and chastise the crap out of them! As imperfect to Southern California is, if THAT BLIND GUY were walking the streets, feeling his way with a cane, nearly getting killed by hundreds of cars, a police officer would pull over and find out where the guy is and find out where I lived and find out who his case worker is that they would care there’s not a whole lot of that here in Nevada. They don’t tell you all that stuff when I Nevada tourism guide!

    He would have a counselor with the Braille Institute, he would have probably housing it was very good because he has a total disability , that’s what I have but I’m not getting full SSDI for it it’s called the disability that never goes away-like mine which is epilepsy.

    He should have someone helping him a PCA, just like what I used to have until moving to the wild west where everybody fends for themselves and people just watch it all and few help.

    I should have all the benefits of a blind guy has anybody and both of us should know that where ever we go we are driven by a driver.

    The Federal Government needs to rethink the way they allocate the payments people get for SSDI and SSI shouldn’t play God. All should be treated the same.

    Nobody has the right to declare that one disability is better than the other or gets more money than the other. What staff in the heavenly court dictates that? I’ll take pictures of all my medicine that I take during the coarse of a week and have to swallow in the morning so I don’t go to the hospital. I will educate all of them because obviously RTC as a company, the Paratransit division, Senator Reid, and Titus are all in the Dark Ages where epilepsy is concerned. At this very moment August 2nd , 2016 epilepsy is not recognized as a disability in the state of Nevada. WOULD I have come to this cockeyed, dumb state knowing that I would be discriminated against? WOULD I have spent $1,000 moving all my furniture from one state to another, becoming a Nevada state resident, losing all my Medicaid benefits in California when I did that, and then living like this? I don’t think so nobody would their right mind and it’s wrong .
    The Paratransit director Jim Howland told me to my face he didn’t care about people who had epilepsy because he didn’t have to care. Caring about the people he served was not a prerequisite of working and feeling his job. Can you believe he would have the audacity to say such a stupid thing yes he did. I want him fired and replaced by someone who was compassionate and kind and caring and understands about all disabilities not just physical disabilities but neurological disabilities like mine that’s what epilepsy is how about other ones physical ones all disabilities don’t put an imp somebody the equivalent of a chimpanzee behind a desk Who’s acting as God to everybody turning him down when he doesn’t even know what he’s doing when his decisions have bad implications on the people he’s doing it on like mine did. He made the decision to allow me to be injured and put me at risk and that was a bad decision as well as Jim Champou and Tina Quigley.

    Me and the blind veteran are mote alike than observers would guess. I fed him and he ate and that was good but he needed way more than I could give. I felt bad that I couldn’t do more.
    I’m not a social worker I’m just a person on a limited income trying to make a difference in a two-bit town that it seems that the going rate in Nevada is they just don’t care.

    Dina Titus didn’t care that I didn’t have my Paratransit ID. I met with her office and I had to drop seizure in her parking lot. My left knee got all ripped up and bloody and I have pictures of it to show pictures of it to show Senator Harry Reid , along with with some shocking photos of what my first studio looked like here-that’s what $728 buys!
    A picture speaks a thousand words. You can say things until you’re blue in the face and people just don’t get it. You show a picture of something and all of a sudden people wake up out of their stupor and it becomes real. To see up close and personal how people live.

    Not one of Dina Titus’s advisors came out and even asked me am I alright.
    Apathy seems to be Nevada’s creed. Apathy towards the dead pedestrians who get pummeled daily by drunk, preoccupied drivers who aren’t paying attention to the road and you’re not paying attention to stop signs, red lights and do not know the word yield. I’m a pedestrian and there’s lots of other people who are too.
    Senator Reid needs Paratransit if he can barely see and relies on a personal care attendant which I should have like I had in California for 25 years and a driver like I had for over 25 years in California. That right there should not require a test at all should have wished it? There should have been no test for me whatsoever for Paratransit especially when the test is not only test for mobility issues that’s all it does. Most disabilities are invisible and are not Mobility related so going off on a tangent here with my particular situation and I’m fighting for but it’s not everyday you meet with a Federal representative.

    No TV set, no cable, no cable bill either. All the news that I get is on average about 200 different apps that are on my Galaxy Note 4 and they’re programmed for headline news so immediately when the news comes out I get it. Twitter it’s also great for finding out what’s going on in the world as well as Facebook.

    I get it on Headline News, I get it on CNN I get on Las Vegas Review-Journal sometimes I go to CBS News because I like their correspondence and I think they do a good job of covering stories.

    We can take our nation anywhere we wanted to go but we have to think about the future and not just be selfish.

    I wrote Mr. Khizr Khan on Facebook and asked him if we could petition or do some kind of proactive action that would deem Donald Trump as unfit to hold the position of the president of the United States of America. Many people may not know this but he’s an attorney who graduated from Stanford University. Khizr Khan is a very eloquent, hard-working American Muslim who earned every cent he’s getting and who, even though he was verbally attacked by Donald Trump, managed to speak in an eloquent way and choose his words ever so precisely. I commend him and I told him that in an email and a private message.

    We need to increase more positive ways that we can communicate with one another rather than blowing each other up and watching the body parts fly of all the innocent people who die just to kill one person.
    War just like Trump is a triple loss now and in the future. Let’s avoid both!

    Written by Paulette Le Pore Motzko
    Copyright August 2, 2016
    Link from CNN Headline News

    Paulette Le Pore Motzko
    August 2nd, 2016 at 10:23 a.m.

    Larissa Martinez in her Valedictorian in Graduation Speech: I’m Undocumented

    Valedictorian Larissa Martinez said in her graduation speech: “I’m undocumented”

    http://www.cnn.com/2016/06/10/us/texas-undocumented-valedictorian-trnd/index.html

    You have to read what this very brave young lady said as Valedictorian at her graduation. Her courageous speech surprised everyone, and she was bright in saving her secret for a “punch line “at the end of her speech.

    America was founded on the principles that all people have the same rights.

    She made a factual statement about Trump, about “his wall built on hatred”… and I give her a standing ovation for that one.

    I personally feel Trump should be thrown out of the political race based on his racist, anti-American view points and his repeat, tasteless racial generalizations.

    I cannot believe how easily and quickly I made friends with Larissa Martinez on Facebook after searching for her.

    We talked back and forth using the Instant messaging app and over 80,000 were searching to find her or talking about her there.

    I wrote this on her profile page, and I’m pleased with the words I wrote so I share it with you here.

    “CONGRATULATIONS for your excellence in your academics and also in your bravery to stand up and disclose that our immigration system I’d broken and also about saying that Trump us building a walk out of hatred. You are so astute and you are going to go far in this world. You already have! I am so happy we became friends so quickly here. If you should ever want to make your opinions heard on a wide scale, my blog Totally Inspired Mind has a wide readership, and you can send me your story and I will air it to 100 countries. I have a loudspeaker to the world.

    God bless you Larissa Martinez. You are one extraordinary young lady!

    I am happy I tuned on to CNN this morning and read your story!”-

    Paulette Le Pore Motzko

    Written by Paulette L Motzko
    Paulette L Motzko
    June 12th, 2016 12:11 p.m.
    Updated , 12:58 p.m.