Light House by James Taylor & “A Lighthouse is what I Hope to Be” by Paulette Le Pore Motzko

I am so surprised I have never heard this beautiful song by James Taylor and that it wasn’t played more when it came out years ago, and isn’t played more now. 
His music got me through high school and it’s still getting me by. Between his melodic harmonies,  beautiful guitar playing, and wisdom filled words…he’s still got it and illustrates how you can get better as you get older

Like James Taylor’s beautiful song,

 I  want to be a lighthouse that shine’s a ray of hopeful light out for all to see…

I want it lead the way to safety and more positive and hopeful paths for others.

I have treaded tragic paths so gruesome it would shock most people and I don’t think the average person could have lived and survived through it. I know they wouldn’t have.

Fortunately I wasn’t made average though, and I am always adapting each day, doing the best with what parameters I am given.

I have lived through a literal hell of health problems, striving for better times while making most of the least, while becoming more.

 I had to become strong, industrious and good at research to find the answers to my medical dilemmas and to get answers on how to find my cure to intractable catamenial epilepsy. There is no cure, but with the right medicine, doctor, diet, sleep and winning attitude, I am doing very well. After all, when you have everything to gain from finding the answers, you look harder and relentlessly. 

 When you do find life changing answers to help yourself, you can also help others with it as well and possibly even make history….which gives me great joy at the mere thought. 

In spite of all the hell and lack of friends throughout my life, who I thought had integrity but found friends who are not genuine when they discover you are “different” from them and don’t like you unconditionally as I do with others.

 I always focused on what my abilities were and all the positive aspects of my life. Being dealt a disability-epilepsy at nine years old; that is all I have known. My best and first friend was blind like Helen Keller, and she was genuine and thoroughly as accepting of me as I was her. I learned qualities like compassion and empathy early though, unlike most kids. 

Those earliest memories helped form my character who us one who sees the beauty in all people.

I continually tried to push to the limits, erasing the word DIS and maximizing the word ABILTIES.

I hope and pray one day my disability will simply fade away like a ship in the bleak of night, passing the lighthouse on by, letting my light shine as it was always supposed to.

I hope one day my light will shine so brilliantly, like an aurora borealis crystal, sparking so bright that people forget and simply don’t care that I was “disabled” at all….but know my special talents far way anything else. 
Written by Paulette Le Pore Motzko,

Images from Zedge

Compiled by Paulette Motzko

Copyright June 23rd, 2017

12:23 midnight

Updated 7:03 a.m.

3 Followers Until There are 3,000 Followers on Totally Inspired Mind.com. 

Thank you to all my followers and the world in general for embracing my idea of creating a place where positive-minded, Triple-Winning People could Congregate, Share and Make a Difference.

Written and compiled by 

Paulette Le Pore Motzko on 

June 2nd 2017 at 8:30 a.m.

Image of Paulette Motzko photographed by Leonardo Valencia. 

Photo editing by Paulette Motzko, Valencia Motzko Inc., Copyright 2017

Ramona’s Alzheimer’s Disease Daily

http://paper.li/PollyMotzko/1356862348#/

There are over 100 contributors on this issue of Ramona’s Alzheimer’s Disease Daily.

Composite Sepia Tone Image of Ramona Lea Le Pore & 

Paulette Le Pore Motzko created by Paulette Motzko.

 Copyright Paulette Motzko,

 PLM Studios, 2015, 2017

I hope my newsletter helps someone you know who has Alzheimer’s disease, dementia or memory trouble and also helps the caregivers who care for them.

Word Cloud Inspiring Alzheimer”s Disease Image created by Paulette L. Motzko.

Copyright May 2017.

Written by Paulette L. Motzko.

Updated Friday, May 26th, 2017 at 5:10 p.m.

When $65,000 a year for a drug is applauded : Pharmaceutical Prices & A Disabled Person’s Right To Live in Dignity with All Needs Met

When $65,000 a year for a drug is applauded

http://www.cnn.com/2017/04/03/health/prescription-drug-prices-public-opinion/index.html

Paulette Le Pore Motzko’s Note to Pharmaceutical Companies on Placing People First and Nevada’s Unfair Treatment of People with Epilepsy, Civil Rights & Disabilities 

I wish more pharmaceutical companies had more or a “Triple Win Attitude”: I Win, You Win & Society Wins. Huge multi million dollar companies need to keep ever present the real, flesh and blood people they are developing the drug to help.

They simply can function effectively as a business and still charge less  for the consumer. 

For instance, my medicine for epilepsy called Vimpat that I take is $20 a pill made by UCB. It cost nearly $2,300 a month along with my Tegretol that I take for a complex partial epilepsy. I have Nevada Medicaid and am on SSI, which allows you to make money and collect it, and pays less than SSDI-full disability.  (it also took two and a half years to win with the aid of a social security disability lawyer  too and I had to say goodbye to my alimony from the rocket scientist I was married to for 15 years to get that crappy $728 but my medical is covered. 

Yet after stating all those facts, the state of Nevada doesn’t think anyone who was diagnosed with epilepsy has a medical conditiom or termed disabled, even though the director at the DMV told me I will automatically get a disabled placard when I update my Nevada state ID.

 (I’m still trying to obtain a certified copy of my old marriage license to prove I’m Paulette Le Pore Motzko. That’s a $65 stupid document is so outrageous it is unbelievable. I’ve been divorced from him since 2001 and my name was legally changed in Garden Grove, California in 1986, when I got married.  I’m going to go talk to one of my friends who is a librarian and see if she can get me the silly document free because $65 is a lot of money to prove I’m who I am! I’ve been trying to get that document 3 times now and it is difficult since my CA ID expired on my birthday last August.

Nevada needs to spend more time educating their political leaders about things like crimehuman dignity, the pedestrian fatality rate and placing penalties on drunk drivers and their educating RTC and people who are public servants about various disabilities, NAMELY neurological ones like EPILEPSY. That would use everybody’s time in an effort worth expending time on.

This may be Nevada and it may have the worst weather in the United States, and 60 mile an hour-knock you on your ass dust storms, high fraud rates,  allergies that wont quit due to blowing dust, and vapes and casinos on every corner with few nonsmoking areas other than Starbucks.

But Nevada is still only one state in the USA it still is the United States of America. And as far as I’m concerned as far as I know, in the USA, we all have certain basic rights.

One of those rights is to be treated fairly. Denying people with epilepsy the right to use Paratransit and having the head Federal representative not know what epilepsy even is is a crime.  

That should be against the law and it probably is.

After after the grand negligence that happened to me regarding Paratransit  and the callousness and apathy on behalf of Senator Harry Reid’s office is disgusting.

 It doesn’t reflect great kindly on him.  The irony is Harry Reid can barely see and uses Paratransit himself, so you think he’d be the first understand the meaning of a doctor’s letter when a doctor writes for a patient to take a medication and says you need it to live, which mine has done since age 9.

You think he would understand as well as the governor,  how important it is to look after the safety of people with epilepsy and not allow them to be injured. I was.

 I was talking to Harry Reid about raising the cost of living index to $1200 a month for all people on SSI and SSDI. 

I still have pictures of the first place I lived in when I first moved here.  That horrid $728 a month buys nothing  in terms of living quality and your standard of life. All you have to do is  think and care and be a responsible person realize that along with all inflation and elevated prices going up, the cost of living index for all disabled people  hasn’t been raised in over 20 years.

SSI is $200 less than what California has per month. Who created an SSI (supplementary Social Security) of $728 anyway? A monkey with an abacus?  Everything needs to be updated  to reflect 2017 prices. Make the minimum BE $1000 for God’s sake! Round it up. Turn the insulting, impoverished amount in to something a human being can really spend, not just make due in the real world. $1200 is actually usable and workable  for the average person.

 Anybody who thinks that SSI and SSDI checks are handed on a platter they are not you are sadly mistaken.


Image from Pinterest.

Lawyer Bill LaTour won my case in Southern California and I can’t count all of the doctors I went to and specialists and career counselors and all the questions I had to answer and psychological assessments in order to finally present my case. Most who are disabled would rather be working. In the final hearing all of the doctors and the career counselor appeared in a small courtroom and they’re the judge asked me what my name was and after about 5 minutes he reviewed all the evidence presented by every one of the doctors that I had to see you over the course of a year and a half before he finally awarded me ssi. That took a mere five minutes and those were the only words that I other than that. 

You can’t sue the government but you can sue people who work for the government.  And one by one I will if I don’t get my Paratransit FOR MYSELF AND SET A PRECIDENT FOR ALL WHO HAVE EPILEPSY IN THE STATE OF NEVADA. 

After all, I’m the former President and founder of The Epilepsy Connection which was a grassroots organization in Orange County, California  that helped countless people in California and many other states, and three other countries who had no other resources whatsoever. I’m also the former director of the Epilepsy Foundation sub affiliate in Garden Grove, California years ago. 

In other words, I am a catalyst for positive change and I hope to  merge forces with other disabled people making us stronger as a united team.


 I’ve got arthritis in that left ankle that won’t go away, just as my dad was  just about paralyzed in a wheelchair from osteoarthritis  before he died several years ago.

After having a drop seizure- due to being out in 115 degree heat when I shouldn’t have been.  That because I was having problems but two idiot’s went against my epileptologist’s letter stating that. I think that’s a crime isn’t it? 

DAN HOWLAND AND JIM CHAMPOU, THE IDIOTS WHO DIDNT VALIDATE THAT DOCTOR’S LETTER AND THOUGHT DR. EVANGALISTA WROTE IT FOR THE FUN OF IT, INSTEAD TO PREVENT INJURY TO ME.

Maybe no lawyer in Nevada has wanted to take my case YET, IT IS A crime AND A  double crime since Dan Howell and told me he didn’t care about people with epilepsy to my face  and he said he didn’t care about learning about anything to do with them he liked being ignorant. After everything  hits the fan and people pay the price they should have paid a couple years ago but I wasn’t any kind of health condition  to be able  to press charges, I hope he’s fired  and not only that I hope charges are filed on him  for endangerment and that is endangering me.

I believe the max I can do is $10,000  in the state of Nevada for him personally and  also Jim shampoo $10,000 and also Tina Quigley, the head of RTC , who all she could say during our phone conversation was “uh huh” after I said anything.  In other words, she did nothing and could have been forced my Paratransit ID once suck it but she did not. That’s another $10,000.

 They put my life at risk because I was having drop seizures of time and that was written in the letter so that’s called personal injury and I with all the evidence that I can bring which is a hell of a lot of it I call it instant win.

It is the principle here. I am hoping I won’t need to and they will come to their senses. Maybe the  Governor can hear the whole sordid story and make it right trade she seemed like the most level-headed person in the most articulate intelligent person I’ve seen hold office in Nevada so far.

 I think Nevada has some disabled Senators who have disabled minds and need to greatly educate themselves about what all this abilities are an update themselves with 2017.

Civil rights and then do the educate themselves on disabilities that go far beyond physical ones in a wheelchair.

The statistics on disability is there are more people with invisible disabilities like epilepsy than those with more visible ones.

California was better with Paratransit by far.  I had Paratransit in California over 25 years and I come to the 1800’s Wild West High Desert of Nevada and here they turn me down. I called Paratransit once waiting 2 hours and after the two hours the lady said, ” oh didn’t you know? Just because you call Paratransit doesn’t mean it’ll show up!” 

Ignorance again.   

You shouldn’t be a leader in the state if you are igorant in the ways I have seen. Dina Titus, Head of Transportation had no desire to help me get what I was owed as a disabled American citizen.

Nevada Medicaid pays for my medicine now and I hope it always does because it’s the best combination I have ever been on in my now 55 years young.

 

 

Even all that being said Senator Reid doesn’t think I have a disability-isn’the that rediculous? 

I even sent Senator Reid pictures of my medicine and all the vitamins that I take and the doctor’s letter from my specialist who prescribes my medicine and the copy of my medical ID bracelet and he still didn’t think that I was disabled!

 Living in Nevada is like living in the wild west where they think they can do anything. The American with Disabilities Act is something that I know all about  and because I was turned down for Paratransit here I could sue every senator in the entire State and when  because my civil rights were violated and I broke my left ankle as a result of having a drop seizure a year ago and was nearly in power chair after! Was I disabled enough for you then Nevada  huh 7 read  the governor ? Is that what you want to but everybody Wheelchairs and that’s the only kind of stability you think exist in this world ? Wake up  you need to get your head examined and go look at the medical book and read it all of this abilities that exist in this world there quite a lot of them  we have a lot of components to our bodies not just a physical body  without your neurological system you’re nothing you can’t write you can’t speak you can’t do anything.

I now have arthritis in that left ankle, which makes might a personal injury case that I didn’t want come into the state I just wanted a place to live it was cheap that’s it I didn’t come here for the gambling  I don’t drink I don’t smoke I don’t do drugs and I don’t gamble why did I come here for cheap rent that’s it hat’s part of living in Nevada is not something I like but it’s also against my civil rights too. 

I’ll be talking to the governor of Nevada this year about all of those issues as well as others that affect everyone or just same old and about raising the cost of living index for all people who are disabled to something that allows them to live in dignity, which the $728 a month does not.

I want to see that all people can afford tm what they need to keep them alive. 

Hear that pharmaceutical companies? 

Remember the human element. 

Remember why you’re developing the medicine in the first place.

 What good  is a fantastic medicine with a high efficiency rate and the low side effect rate and a huge success rate if the patients cannot afford it? I’m asking you that question mark I was made a rocket scientist for 15 years and I’m fairly bright that’s not even logical is it to make the price outlandish.

If drugs are so outrageously priced limiting who can take them, it defeats the purpose why the drug was ever created.

 I wish the scientist who developed the drugs could price the drugs because then they would be priced at something reasonable that makes sense. 

Because people who are scientists creating these compounds to help people would never charge people outrageous prices because they’re more humanitarian in spirit than the simply sales reps promoting the products getting huge commissions driving company cars!

 Let the pharmacology medicine developers help set a price that is more accurate.

 I saw pharmaceutical reps every time I went into one of my neurology offices in Orange off La Veta when I was married years ago.  I think what they do should be against the law because they’re giving doctors Kickbacks to promote drugs. because of that, doctors are  not looking at to the best needs of the patient. The Pharmaceutical reps  are allowed to  dangle money in front of a doctor’s faces and saying over here I’ll give you this money -a bribe.

How in the hell can a good doctor think straight  with the ” Wheeler Dealers” walking around dangling incentives.

Pharmaceutical companies remind me of real estate companies in California. Everybody is so greedy that they have to make “over profit” aking for way more than is affordable for most everyone except millionaires. 

 Medicine companies: Remember the people FIRST. Without people in this world you have nothing. Nothing but dust and a bunch of chemicals a test tube that people NEED.

Written by Paulette Motzko on April 5th 2017 at 12:48 p.m. 

This is story was aired on Totally Inspired Mind: Where Posititive Minds Congregate and Beautiful Soul Shine.

TotallyInspiredMind.com

I created the following document on my Galaxy Note 4 Phablet and the edits are coming in on my Samsung S2 tablet. My phablet  overheated just like I do when I even think about the things that I’ve been through for no good reason.  I almost was history in this town so rather than be history I’m going to make history instead, making it better for everyone.








Edited  April 5th 2017 at 3:36

Written by Paulette Le Pore Motzko 

Baby Grand by Billy Joel and Ray Charles on Spotify

Compiled by Paulette Motzko.

Me on my Nanny’s Henry F Miller piano she brought with her from Florida to California when she can to live with us when I was 9 years old. Little would I know how that piano would become my best friend.

I haven’t played this song for some time  since I had my digital Roland 88 keyboard with incredible sampled sounds of a full size concert grand on it. Like many things, it was sold when  moved to Las Vegas. I have often thought of selling this other couch nobody ever sits on and getting a new 88 keyed awesome sampled digital piano with weighed keys. I would have way more FUN with it.

My upright rosewood grand with the dynamic range of a medium size grand piano came with me and sits awaiting my eager hands to play that very song Baby Grand that is the reason I bought the score you see in the picture. 

Images photographed and created by Paulette Motzko, PLM Studios, Las Vegas Nevada, Copyright April 2017

April 3, 2017 at 8:46 p.m.

Updated 8:57 p.m; 10:40 p.m.

Quotes About Purpose

​Quotes about Purpose

Written and Compiled by Paulette Le Pore Motzko.

All images photographed and created by Paulette Le Pore Motzko, PLM Studios Copyright March 2017

March 22nd 2017

As far as we can discern, the whole purpose of human existence is the Kindle a light in the darkness of my being. –

Carl G Jung 1875 – 1961. Memories, Dreams, Reflections.

Men’s Perfection would be the Fulfillment of his end, and his end would be Union with his maker. William James 1842 to 1910.

A good cause makes a stout heart and a strong arm. – Thomas Fuller 1654 – 1734.

The purpose of life is undoubtedly to know oneself. We cannot do it unless we learn to identify ourselves with all that lives. The sum total of that life is God. Hence the necessity of realizing God living within every one of us. The instrument of this knowledge is boundless, selfless service. – Mohandas K Gandhi. In Mahedev Desai, the Diary of Mahedev 1958

Everything living strives for wholeness.- Carl G Jung 1875 – 1961 from on the nature of Dreams 1945

Making a chief design and a great business, not to be rich and great but several live in this world as thou mayst reasonably believe that has got with a friend. Thomas Fuller 1654 to 1734. Intraductio ad Prudentum, 939, 1731

Pursue some path, however narrow and crooked, and which you can walk with love and reverence. Henry David Thoreau. 1817 to 1862. From his journal October 18th 1855.

Not only to see and find the Divine in oneself, but to see and find the Divine in all, not only to seek one’s own individual Liberation and Perfection, but to seek Liberation and Perfection of others is the complete law of the spiritual being. – Sri Arubendi 1872 – 1950. 

Helen Keller says: “Thus I came up out of Egypt and stood before Sinai, and divine power touched my spirit and gave it sight, so that I beheld many wonders.

Helen Keller Says: “Thus I came up out of Egypt and stood before Sinai, and a power divine touched my spirit and gave it sight, so that I beheld many wonders. And from the sacred mountain I heard a voice which said, ‘Knowledge is love and light and vision.”

https://play.google.com/store/apps/details?id=com.helen.keller.daily

From Helen Keller Daily.

 Compiled by Paulette Motzko on March 18th 2017 at 8:46 a.m.