BLESS THE BEAUTIFUL UNITED STATES OF AMERICA! Happy Flag Day 2017!

Photo created by Paulette L Motzko, Copyright June 2017 PLM Studios.

Wednesday June 14th 2017 at

 Here’s a note about the sparking American flag I used in the photo here….

It is one of my grandmother’s cherished pins she used to wear. She was my mother’s mother and singlehandedly raised her children on her own due to my grandfather James Hubert Hart dying of spinal meningitis when my mother was four years old.

Mom said the day that she finally realized that she was alive was the day she overheard someone talking about who is getting all the kids, and what houses they were all going to because Grandma couldn’t afford to take care of them all herself.

Grandma wasn’t afraid to take a man’s job in a time when it was was very unpopular for a woman to rivet airplanes -but she did. 

There wasn’t anything that could stop my grandmother Ruby Hart.

 She was proud to be an American citizen and so appreciative of everything that you ever did for her— just like my mother.

That’s why when she had Alzheimer’s disease-like my mother had, untiL she touched the face of God nearly a year ago  I didn’t think anything of helping taking care of her.

 I bought her big print Readers Digest books to encourage her to talk and keep her mind active…and they did.

 She read one of them every day … so I bought more for her and she smiled as she read each story.

I found them at local libraries and we would talk about the stories in each story, which would inspire her to tell me about her life recalling memories of when she was younger.

I don’t have a digital image of Grandma-yet’ but I’ll create one for this story I didn’t know I was going to write, until writing the first sentence! 

I know we have our trouble in America, but when you compare us to other countries- it’s pretty damn nice country anyway you look at it. We have precious  freedoms another country can match.

I didn’t say God Bless America because I wanted everyone no matter who they were to be able to relate to the image and the meaning behind image.

 I’m Christian so I’ll always say God Bless America, but as an empowered lady I would love to see all of us all over the world worry less about religion & culture and focus more about just treating each other kindly and know everyone has a right to believe what they feel strongly about.

As long as they are not hurting you or anyone then let him believe it if they find solace and peace through it.

Uniting as living, breathing people who have the power to good-is my dream for not only America but for the world.

Written by Paulette Le Pore Motzko

3 Followers Until There are 3,000 Followers on Totally Inspired Mind.com. 

Thank you to all my followers and the world in general for embracing my idea of creating a place where positive-minded, Triple-Winning People could Congregate, Share and Make a Difference.

Written and compiled by 

Paulette Le Pore Motzko on 

June 2nd 2017 at 8:30 a.m.

Image of Paulette Motzko photographed by Leonardo Valencia. 

Photo editing by Paulette Motzko, Valencia Motzko Inc., Copyright 2017

When $65,000 a year for a drug is applauded : Pharmaceutical Prices & A Disabled Person’s Right To Live in Dignity with All Needs Met

When $65,000 a year for a drug is applauded

http://www.cnn.com/2017/04/03/health/prescription-drug-prices-public-opinion/index.html

Paulette Le Pore Motzko’s Note to Pharmaceutical Companies on Placing People First and Nevada’s Unfair Treatment of People with Epilepsy, Civil Rights & Disabilities 

I wish more pharmaceutical companies had more or a “Triple Win Attitude”: I Win, You Win & Society Wins. Huge multi million dollar companies need to keep ever present the real, flesh and blood people they are developing the drug to help.

They simply can function effectively as a business and still charge less  for the consumer. 

For instance, my medicine for epilepsy called Vimpat that I take is $20 a pill made by UCB. It cost nearly $2,300 a month along with my Tegretol that I take for a complex partial epilepsy. I have Nevada Medicaid and am on SSI, which allows you to make money and collect it, and pays less than SSDI-full disability.  (it also took two and a half years to win with the aid of a social security disability lawyer  too and I had to say goodbye to my alimony from the rocket scientist I was married to for 15 years to get that crappy $728 but my medical is covered. 

Yet after stating all those facts, the state of Nevada doesn’t think anyone who was diagnosed with epilepsy has a medical conditiom or termed disabled, even though the director at the DMV told me I will automatically get a disabled placard when I update my Nevada state ID.

 (I’m still trying to obtain a certified copy of my old marriage license to prove I’m Paulette Le Pore Motzko. That’s a $65 stupid document is so outrageous it is unbelievable. I’ve been divorced from him since 2001 and my name was legally changed in Garden Grove, California in 1986, when I got married.  I’m going to go talk to one of my friends who is a librarian and see if she can get me the silly document free because $65 is a lot of money to prove I’m who I am! I’ve been trying to get that document 3 times now and it is difficult since my CA ID expired on my birthday last August.

Nevada needs to spend more time educating their political leaders about things like crimehuman dignity, the pedestrian fatality rate and placing penalties on drunk drivers and their educating RTC and people who are public servants about various disabilities, NAMELY neurological ones like EPILEPSY. That would use everybody’s time in an effort worth expending time on.

This may be Nevada and it may have the worst weather in the United States, and 60 mile an hour-knock you on your ass dust storms, high fraud rates,  allergies that wont quit due to blowing dust, and vapes and casinos on every corner with few nonsmoking areas other than Starbucks.

But Nevada is still only one state in the USA it still is the United States of America. And as far as I’m concerned as far as I know, in the USA, we all have certain basic rights.

One of those rights is to be treated fairly. Denying people with epilepsy the right to use Paratransit and having the head Federal representative not know what epilepsy even is is a crime.  

That should be against the law and it probably is.

After after the grand negligence that happened to me regarding Paratransit  and the callousness and apathy on behalf of Senator Harry Reid’s office is disgusting.

 It doesn’t reflect great kindly on him.  The irony is Harry Reid can barely see and uses Paratransit himself, so you think he’d be the first understand the meaning of a doctor’s letter when a doctor writes for a patient to take a medication and says you need it to live, which mine has done since age 9.

You think he would understand as well as the governor,  how important it is to look after the safety of people with epilepsy and not allow them to be injured. I was.

 I was talking to Harry Reid about raising the cost of living index to $1200 a month for all people on SSI and SSDI. 

I still have pictures of the first place I lived in when I first moved here.  That horrid $728 a month buys nothing  in terms of living quality and your standard of life. All you have to do is  think and care and be a responsible person realize that along with all inflation and elevated prices going up, the cost of living index for all disabled people  hasn’t been raised in over 20 years.

SSI is $200 less than what California has per month. Who created an SSI (supplementary Social Security) of $728 anyway? A monkey with an abacus?  Everything needs to be updated  to reflect 2017 prices. Make the minimum BE $1000 for God’s sake! Round it up. Turn the insulting, impoverished amount in to something a human being can really spend, not just make due in the real world. $1200 is actually usable and workable  for the average person.

 Anybody who thinks that SSI and SSDI checks are handed on a platter they are not you are sadly mistaken.


Image from Pinterest.

Lawyer Bill LaTour won my case in Southern California and I can’t count all of the doctors I went to and specialists and career counselors and all the questions I had to answer and psychological assessments in order to finally present my case. Most who are disabled would rather be working. In the final hearing all of the doctors and the career counselor appeared in a small courtroom and they’re the judge asked me what my name was and after about 5 minutes he reviewed all the evidence presented by every one of the doctors that I had to see you over the course of a year and a half before he finally awarded me ssi. That took a mere five minutes and those were the only words that I other than that. 

You can’t sue the government but you can sue people who work for the government.  And one by one I will if I don’t get my Paratransit FOR MYSELF AND SET A PRECIDENT FOR ALL WHO HAVE EPILEPSY IN THE STATE OF NEVADA. 

After all, I’m the former President and founder of The Epilepsy Connection which was a grassroots organization in Orange County, California  that helped countless people in California and many other states, and three other countries who had no other resources whatsoever. I’m also the former director of the Epilepsy Foundation sub affiliate in Garden Grove, California years ago. 

In other words, I am a catalyst for positive change and I hope to  merge forces with other disabled people making us stronger as a united team.


 I’ve got arthritis in that left ankle that won’t go away, just as my dad was  just about paralyzed in a wheelchair from osteoarthritis  before he died several years ago.

After having a drop seizure- due to being out in 115 degree heat when I shouldn’t have been.  That because I was having problems but two idiot’s went against my epileptologist’s letter stating that. I think that’s a crime isn’t it? 

DAN HOWLAND AND JIM CHAMPOU, THE IDIOTS WHO DIDNT VALIDATE THAT DOCTOR’S LETTER AND THOUGHT DR. EVANGALISTA WROTE IT FOR THE FUN OF IT, INSTEAD TO PREVENT INJURY TO ME.

Maybe no lawyer in Nevada has wanted to take my case YET, IT IS A crime AND A  double crime since Dan Howell and told me he didn’t care about people with epilepsy to my face  and he said he didn’t care about learning about anything to do with them he liked being ignorant. After everything  hits the fan and people pay the price they should have paid a couple years ago but I wasn’t any kind of health condition  to be able  to press charges, I hope he’s fired  and not only that I hope charges are filed on him  for endangerment and that is endangering me.

I believe the max I can do is $10,000  in the state of Nevada for him personally and  also Jim shampoo $10,000 and also Tina Quigley, the head of RTC , who all she could say during our phone conversation was “uh huh” after I said anything.  In other words, she did nothing and could have been forced my Paratransit ID once suck it but she did not. That’s another $10,000.

 They put my life at risk because I was having drop seizures of time and that was written in the letter so that’s called personal injury and I with all the evidence that I can bring which is a hell of a lot of it I call it instant win.

It is the principle here. I am hoping I won’t need to and they will come to their senses. Maybe the  Governor can hear the whole sordid story and make it right trade she seemed like the most level-headed person in the most articulate intelligent person I’ve seen hold office in Nevada so far.

 I think Nevada has some disabled Senators who have disabled minds and need to greatly educate themselves about what all this abilities are an update themselves with 2017.

Civil rights and then do the educate themselves on disabilities that go far beyond physical ones in a wheelchair.

The statistics on disability is there are more people with invisible disabilities like epilepsy than those with more visible ones.

California was better with Paratransit by far.  I had Paratransit in California over 25 years and I come to the 1800’s Wild West High Desert of Nevada and here they turn me down. I called Paratransit once waiting 2 hours and after the two hours the lady said, ” oh didn’t you know? Just because you call Paratransit doesn’t mean it’ll show up!” 

Ignorance again.   

You shouldn’t be a leader in the state if you are igorant in the ways I have seen. Dina Titus, Head of Transportation had no desire to help me get what I was owed as a disabled American citizen.

Nevada Medicaid pays for my medicine now and I hope it always does because it’s the best combination I have ever been on in my now 55 years young.

 

 

Even all that being said Senator Reid doesn’t think I have a disability-isn’the that rediculous? 

I even sent Senator Reid pictures of my medicine and all the vitamins that I take and the doctor’s letter from my specialist who prescribes my medicine and the copy of my medical ID bracelet and he still didn’t think that I was disabled!

 Living in Nevada is like living in the wild west where they think they can do anything. The American with Disabilities Act is something that I know all about  and because I was turned down for Paratransit here I could sue every senator in the entire State and when  because my civil rights were violated and I broke my left ankle as a result of having a drop seizure a year ago and was nearly in power chair after! Was I disabled enough for you then Nevada  huh 7 read  the governor ? Is that what you want to but everybody Wheelchairs and that’s the only kind of stability you think exist in this world ? Wake up  you need to get your head examined and go look at the medical book and read it all of this abilities that exist in this world there quite a lot of them  we have a lot of components to our bodies not just a physical body  without your neurological system you’re nothing you can’t write you can’t speak you can’t do anything.

I now have arthritis in that left ankle, which makes might a personal injury case that I didn’t want come into the state I just wanted a place to live it was cheap that’s it I didn’t come here for the gambling  I don’t drink I don’t smoke I don’t do drugs and I don’t gamble why did I come here for cheap rent that’s it hat’s part of living in Nevada is not something I like but it’s also against my civil rights too. 

I’ll be talking to the governor of Nevada this year about all of those issues as well as others that affect everyone or just same old and about raising the cost of living index for all people who are disabled to something that allows them to live in dignity, which the $728 a month does not.

I want to see that all people can afford tm what they need to keep them alive. 

Hear that pharmaceutical companies? 

Remember the human element. 

Remember why you’re developing the medicine in the first place.

 What good  is a fantastic medicine with a high efficiency rate and the low side effect rate and a huge success rate if the patients cannot afford it? I’m asking you that question mark I was made a rocket scientist for 15 years and I’m fairly bright that’s not even logical is it to make the price outlandish.

If drugs are so outrageously priced limiting who can take them, it defeats the purpose why the drug was ever created.

 I wish the scientist who developed the drugs could price the drugs because then they would be priced at something reasonable that makes sense. 

Because people who are scientists creating these compounds to help people would never charge people outrageous prices because they’re more humanitarian in spirit than the simply sales reps promoting the products getting huge commissions driving company cars!

 Let the pharmacology medicine developers help set a price that is more accurate.

 I saw pharmaceutical reps every time I went into one of my neurology offices in Orange off La Veta when I was married years ago.  I think what they do should be against the law because they’re giving doctors Kickbacks to promote drugs. because of that, doctors are  not looking at to the best needs of the patient. The Pharmaceutical reps  are allowed to  dangle money in front of a doctor’s faces and saying over here I’ll give you this money -a bribe.

How in the hell can a good doctor think straight  with the ” Wheeler Dealers” walking around dangling incentives.

Pharmaceutical companies remind me of real estate companies in California. Everybody is so greedy that they have to make “over profit” aking for way more than is affordable for most everyone except millionaires. 

 Medicine companies: Remember the people FIRST. Without people in this world you have nothing. Nothing but dust and a bunch of chemicals a test tube that people NEED.

Written by Paulette Motzko on April 5th 2017 at 12:48 p.m. 

This is story was aired on Totally Inspired Mind: Where Posititive Minds Congregate and Beautiful Soul Shine.

TotallyInspiredMind.com

I created the following document on my Galaxy Note 4 Phablet and the edits are coming in on my Samsung S2 tablet. My phablet  overheated just like I do when I even think about the things that I’ve been through for no good reason.  I almost was history in this town so rather than be history I’m going to make history instead, making it better for everyone.








Edited  April 5th 2017 at 3:36

Written by Paulette Le Pore Motzko 

Still one of the funniest shows ever created Seinfeld

Image photography by Paulette Motzko, PLM Studios, April 2017.

It’s refreshing to watch a show that doesn’t resort to either profanity for laughs or talking about sex or graphic descriptions of body parts as on some of the new site coms.

The talent of all the actors along with great writers make for a show that future generations will be laughing at.

We all need laughter in our lives and humor and levity. It’s good for the body, mind and soul. 

Written and compiled by Paulette Motzko.

Test to see if WordPress.com is Still Blocking My Images After Paying $299.00 for their Business Plan. Updated Post

My Business Plan I purchased on September 9th, 2016 for TotallyInspiredMind is set to auto renew at $299.00 yearly on the same day this year, only if I feel their customer service improves radically and if I feel like I’m a valued part of what makes wordpress.com successful.

They still haven’t told me WHY  they needed more money from me-dodging the question, and instead said that if I didn’t update my payment information they would destroy my site! That’s kind of like backing me into a corner like a rat! Of course I don’t want my site destroyed after I worked relentlessly on it, and it’s won Awards, and I now have attracted nearly 3000 followers who have followed my journey from Orange Cpunty, California to Las Vegas, Nevada, and nearly hundred countries tune in monthly.

(Since this post was there. I got an apology from Edward, one of their a”Hppiness Engineers” which I think is a stupid thing to call themselves. ALL THE BLOGGERS ARE INTELLIGENT PEOPLE who are on here are serious, for the most part, about promoting their work. In a correspondence that I wrote yesterday afternoon,  to Maureen, the lady that I was supposed to have a chat (texting back and forth to infinitum) -which I did not show up for.

I told her that I am too busy to sit there chatting like a idiot when this warrants a voice-to-voice, real human being, because I deserve a more personal phone call from someone within the corporate offices and wordpress.com.  

Now they were wrong admitted it, they still have it resolved the fact that I paid for numerous other domains that I’ve not seen the.com status on my websites.)

 I will be looking seriously thinking about moving my sites somewhere else and hiring a local web company to help me move all the web content over to wordpress.org  where I can be guaranteed that I don’t have drama like this.

 The thing I will miss dramatically though is the ability to reblog other phenomenal writers material. 


It’s not so much the reblogging the other people’s material, but the fact that I become friends with almost every person that I share their material- and I get to know them as human beings and that is enormous. so, in my heart of hearts I would like to work it out with them.)

 

I created Totally Inspired Mind in 2012, and over time have created many other web logs on WordPress.com. Many have won awards and are very highly rated.

You would think, that whatever money WordPress.com made off me and my winning content, I could have got a better response from them-after all these years- than “Update your financial information or will destroy your site!” That shows no diplomacy or resonsibility to me to be a great company looking after my best interests, does it?  

What would you do if you were me? 

I’m interested in hearing what you would do if you were me.

 I welcome your comments and suggestions on this matter to me.

I’d like to think the company I now have a venerable Blogging Empire on -appreciates MY BUSINESS, my presence, and think that my work is so valuable they wouldn’t think of destroying it in a million years!  

The CEO and President of WordPress.com should contact me assuring me nothing like it will happen again. 

 I like him or her to give me an apology and to be sincerely horrified by the responses of three of their stupid “happiness engineers.”  

If you’re paying about $300 or more to make a site run I don’t know about you, but I want to do with somebody other than a happiness engineer who in one heartbeat thinks to destroy your brain child that so many woman hours went into I couldn’t begin to count them all. 

Would you call someone to happiness engineer if they wanted to destroy your blog?

Maybe a Grief Creator, or a Drama Creator would more aptly named what their “Happiness Engineers” really are  in the real world.

It is after all WordPress.com is a business and it runs very simply. 

The fact that after I made the decision to host Totally Inspired Mind here in 2012 I pay them for specific services and for doing that, I expect a level of professionalism and quality control to insure all THE WORK I INVEST in each Web site are protected. 

I want the company who has a vested interest in what I build and create and works with me to PROMOTE and insure and improve it, if anything.

The last thing I thought I’d ever hear if some idiot say they wanted to destroy it though when I paid for the VIP plan and the FAULT WAS THEIRS that they admitted in an email to me.

And what would have happened to me if they didn’t realize that they goofed? 

And if I hadn’t pointed it out so very very carefully? 

I don’t like other people make decisions so quickly the could adversely affect me. That’s a major character flaw in the company which I will see you to never ever happens to me again.

 I thought it would feel different about it but I’m down life’s pretty simple: you don’t like what you’re getting from one you go to another person you go to another company where they do respect you.

 Every blogger is Golden and their contant is prized. After all, all the top-rated blogs on wordpress.com make WordPress exist. Without the bloggers WordPress is just dust. Remember that. It’s like with a good restaurant you can have the best food in the world, the best silverware the best prettiest pictures on the wall but if you treat people like garbage you have no people there -without people you have no restaurant.

Even though I heard from the customer service person named Eduardo who apologized for what they did and said I was 100% right and said that they were wrong and said it was blame to a computer glitch that they’re resolving, it still bothers me because they were so quick to destroy my site over a mistake they made when I worked on this is 2012 and that is Unforgivable.

The fact that they have stupid people who work for them would make such an idiotic decision or even say it or suggest it is repulsive. They’re supposed to help me promote it not destroy it common the fact that they goofed and made a mistake like that admit it or not, they don’t treat their valued customers the way they should. Is Albert Einstein said “when you repeat the same mistake over and over again it is called Insanity.”

Period I’m a nice lady but I’m not an idiot and business works very simply I pay them lots of money to make all my sites work and in one second a customer service three people didn’t answer my questions, and some idiot who didn’t invest one time in any of the things I’ve created nor know the amount of work that goes into creating it nor does he care was willing to destroy it and one second! Not cool. Not good business practice the better business bureau if I would tell them this whole story they would agree with me and I think any view bloggers out there the millions who sign up to wordpress.com would agree with me. You’ve seen the site from the day I created it and hotel room and Huntington Beach California when I realized I couldn’t take care of my mother any longer who had severe Alzheimer’s disease and I know that she needed and entire staff caring after her versus me, and I needed to not do it any longer and take care of me. Those realizations opened up a world for me and what I wanted to see what this site is exactly what it’s become. This is become a place where extraordinary people who care about the world, the environment, the future, children and everything that matters in life all congregate people people who care more about the entire world and themselves. Every extraordinary follower who is joined this site over the last month what you been over I believe 50, I thank you for your very special presence here. You make the site great and you make it very very special by you being here.

Obviously the people who run WordPress.com are not Triple Winners. They dont care about me, or my original web that gave them permission to share all over the place when I signed up to WordPress.com.

It’s too bad that WordPress.com doesn‘t get the big picture and realize that people like  me- and you-my dedicates readers and followers matter.

Without the writers and without photographers and without loggers WordPress goes bankrupt.

It’s too bad WordPress doesn’t see it as plainly as I are you do. Obviously money is the only thing on their minds and they don’t care what they do to my content everybody with it.

know that and don’t see that and don’t treat people who are VIPs with respect.

 Wordpress hasnt shown they as a company appreciate my business  and since this is a big wide world I will be working on taking their business elsewhere.

I wasnt able to find anyone to answer me with an intelligent answer to my intelligent question when I’ve asked them on numerous times why they wanted more money when my billing date is nowhere near due.

When after 5 years contributing original content here, the only thing I hear is “update your financial information or will destroy your site”? 

That’s not cool. As matter fact it’s not even professional.

I’ve saved every email, every bit of Correspondence on Evernote from WordPress.com. I have everything dated from every “customer service person” and “happiness expert”- and Im not happy who has contacted me with this company. Even with them admitting they screwed up and Eduardo with WordPress.com admitted they had no right to ask for continually more moolah….and they are still adressing why all the domains I bought don’t reflect .com on them.

Their stupidity and rash bad decisions almost cost me every bit of work I spent on here, turning 5 years of labor intensive efforts into dust. It is that and ignorable fact that i’s  going to have me move it elsewhere. The site will exist it’s just going to be better than one of these here with no limits and no fear tactics to get unauthorized payments from me.

I’m flabbergasted because I would have thought that WordPress.com would have realized how they can’t exist without all of the writers, bloggers and everyone who makes this site possible. I wouldn’t have created a venerable Empire here if I had thought any different.  I guess having hundred countries a month reading your blog isn’t good enough for him though huh. They didn’t create any of my site’s they are so quick to yet they are so quick to think of destroying them?

This is definitely not a good working creative environment.

Anybody have any comments, suggestions, did anyone learn anything by me airing the story?

Hopefully, if you paid for the Business or Premium plans like I did, and you didn’t get what you bought,  you’ll address it and get what you should have all along.
Written by Paulette Le Pore Motzko on Monday March 27th 2017 at 1:22 p.m.

Updated March 28th, 2017

11:12 a.m.

Updated on March 31st 2017 at  1:40 p.m.

 

Image of Paulette Motzko taken by her beautiful  friend Yanita.   Photo editing by Paulette Motzko, PLM Studios, Las Vegas Nevada.