A Super Brief and Basic Explanation of Epigenetics for Total Beginners | What is Epigenetics?

https://www.whatisepigenetics.com/what-is-epigenetics/

I’m reading a book called “The Grain Brain” by David Perlmutter and Kristin Loberg which illustrates how all kinds of things that we do everyday affect our brain and the aging process and also how we can control them to optimize are resistance to disease.

Some of the diseases we can control acquiring are ones like Alzheimer’s disease, obesity as well as diabetes cancer and other ailments.

It mentioned in the description on the book one of the things the author said, that was mentioned in an epigenetic report, and I really had no idea what it was but I had an idea what I thought it was. But, to my happy surprise, epigenetics is the study of how we can control way more about our genetic disposition than most of us know or had thought possible.

I bought the book on Audible and I’m just getting started with it the Grain Brain, but I can share the link that goes directly to the book if any of you are interested.

I don’t know about you, but I’ll do anything and everything to not acquire Alzheimer’s disease like I saw my parents have and my grandparents, plus I want to reduce the risk factors that I have for obesity, of which I am carving my curves and employing healthier lifestyle habits, – epigenetics also involves our ability to control diabetes and also anything that might be inflammatory for arthritis.

If you have any of those ailments, and you’re interested in seeing how you can minimize the symptoms of them, the Grain Brain might be one you might want to check out from your local library or look at your local bookstore, or Google Play Books, LibriVox, or Audible.

Text written by Paulette Motzko.

Story from

Epigenetics.com

Photos from Pinterest from

The Law of Positivism

Epigenetic Labs

Bruce Lipton

PsychologyofHealing.com

BLESS THE BEAUTIFUL UNITED STATES OF AMERICA! Happy Flag Day 2017!

Photo created by Paulette L Motzko, Copyright June 2017 PLM Studios.

Wednesday June 14th 2017 at

 Here’s a note about the sparking American flag I used in the photo here….

It is one of my grandmother’s cherished pins she used to wear. She was my mother’s mother and singlehandedly raised her children on her own due to my grandfather James Hubert Hart dying of spinal meningitis when my mother was four years old.

Mom said the day that she finally realized that she was alive was the day she overheard someone talking about who is getting all the kids, and what houses they were all going to because Grandma couldn’t afford to take care of them all herself.

Grandma wasn’t afraid to take a man’s job in a time when it was was very unpopular for a woman to rivet airplanes -but she did. 

There wasn’t anything that could stop my grandmother Ruby Hart.

 She was proud to be an American citizen and so appreciative of everything that you ever did for her— just like my mother.

That’s why when she had Alzheimer’s disease-like my mother had, untiL she touched the face of God nearly a year ago  I didn’t think anything of helping taking care of her.

 I bought her big print Readers Digest books to encourage her to talk and keep her mind active…and they did.

 She read one of them every day … so I bought more for her and she smiled as she read each story.

I found them at local libraries and we would talk about the stories in each story, which would inspire her to tell me about her life recalling memories of when she was younger.

I don’t have a digital image of Grandma-yet’ but I’ll create one for this story I didn’t know I was going to write, until writing the first sentence! 

I know we have our trouble in America, but when you compare us to other countries- it’s pretty damn nice country anyway you look at it. We have precious  freedoms another country can match.

I didn’t say God Bless America because I wanted everyone no matter who they were to be able to relate to the image and the meaning behind image.

 I’m Christian so I’ll always say God Bless America, but as an empowered lady I would love to see all of us all over the world worry less about religion & culture and focus more about just treating each other kindly and know everyone has a right to believe what they feel strongly about.

As long as they are not hurting you or anyone then let him believe it if they find solace and peace through it.

Uniting as living, breathing people who have the power to good-is my dream for not only America but for the world.

Written by Paulette Le Pore Motzko

Ramona’s Alzheimer’s Disease Daily

http://paper.li/PollyMotzko/1356862348#/

There are over 100 contributors on this issue of Ramona’s Alzheimer’s Disease Daily.

Composite Sepia Tone Image of Ramona Lea Le Pore & 

Paulette Le Pore Motzko created by Paulette Motzko.

 Copyright Paulette Motzko,

 PLM Studios, 2015, 2017

I hope my newsletter helps someone you know who has Alzheimer’s disease, dementia or memory trouble and also helps the caregivers who care for them.

Word Cloud Inspiring Alzheimer”s Disease Image created by Paulette L. Motzko.

Copyright May 2017.

Written by Paulette L. Motzko.

Updated Friday, May 26th, 2017 at 5:10 p.m.

When $65,000 a year for a drug is applauded : Pharmaceutical Prices & A Disabled Person’s Right To Live in Dignity with All Needs Met

When $65,000 a year for a drug is applauded

http://www.cnn.com/2017/04/03/health/prescription-drug-prices-public-opinion/index.html

Paulette Le Pore Motzko’s Note to Pharmaceutical Companies on Placing People First and Nevada’s Unfair Treatment of People with Epilepsy, Civil Rights & Disabilities 

I wish more pharmaceutical companies had more or a “Triple Win Attitude”: I Win, You Win & Society Wins. Huge multi million dollar companies need to keep ever present the real, flesh and blood people they are developing the drug to help.

They simply can function effectively as a business and still charge less  for the consumer. 

For instance, my medicine for epilepsy called Vimpat that I take is $20 a pill made by UCB. It cost nearly $2,300 a month along with my Tegretol that I take for a complex partial epilepsy. I have Nevada Medicaid and am on SSI, which allows you to make money and collect it, and pays less than SSDI-full disability.  (it also took two and a half years to win with the aid of a social security disability lawyer  too and I had to say goodbye to my alimony from the rocket scientist I was married to for 15 years to get that crappy $728 but my medical is covered. 

Yet after stating all those facts, the state of Nevada doesn’t think anyone who was diagnosed with epilepsy has a medical conditiom or termed disabled, even though the director at the DMV told me I will automatically get a disabled placard when I update my Nevada state ID.

 (I’m still trying to obtain a certified copy of my old marriage license to prove I’m Paulette Le Pore Motzko. That’s a $65 stupid document is so outrageous it is unbelievable. I’ve been divorced from him since 2001 and my name was legally changed in Garden Grove, California in 1986, when I got married.  I’m going to go talk to one of my friends who is a librarian and see if she can get me the silly document free because $65 is a lot of money to prove I’m who I am! I’ve been trying to get that document 3 times now and it is difficult since my CA ID expired on my birthday last August.

Nevada needs to spend more time educating their political leaders about things like crimehuman dignity, the pedestrian fatality rate and placing penalties on drunk drivers and their educating RTC and people who are public servants about various disabilities, NAMELY neurological ones like EPILEPSY. That would use everybody’s time in an effort worth expending time on.

This may be Nevada and it may have the worst weather in the United States, and 60 mile an hour-knock you on your ass dust storms, high fraud rates,  allergies that wont quit due to blowing dust, and vapes and casinos on every corner with few nonsmoking areas other than Starbucks.

But Nevada is still only one state in the USA it still is the United States of America. And as far as I’m concerned as far as I know, in the USA, we all have certain basic rights.

One of those rights is to be treated fairly. Denying people with epilepsy the right to use Paratransit and having the head Federal representative not know what epilepsy even is is a crime.  

That should be against the law and it probably is.

After after the grand negligence that happened to me regarding Paratransit  and the callousness and apathy on behalf of Senator Harry Reid’s office is disgusting.

 It doesn’t reflect great kindly on him.  The irony is Harry Reid can barely see and uses Paratransit himself, so you think he’d be the first understand the meaning of a doctor’s letter when a doctor writes for a patient to take a medication and says you need it to live, which mine has done since age 9.

You think he would understand as well as the governor,  how important it is to look after the safety of people with epilepsy and not allow them to be injured. I was.

 I was talking to Harry Reid about raising the cost of living index to $1200 a month for all people on SSI and SSDI. 

I still have pictures of the first place I lived in when I first moved here.  That horrid $728 a month buys nothing  in terms of living quality and your standard of life. All you have to do is  think and care and be a responsible person realize that along with all inflation and elevated prices going up, the cost of living index for all disabled people  hasn’t been raised in over 20 years.

SSI is $200 less than what California has per month. Who created an SSI (supplementary Social Security) of $728 anyway? A monkey with an abacus?  Everything needs to be updated  to reflect 2017 prices. Make the minimum BE $1000 for God’s sake! Round it up. Turn the insulting, impoverished amount in to something a human being can really spend, not just make due in the real world. $1200 is actually usable and workable  for the average person.

 Anybody who thinks that SSI and SSDI checks are handed on a platter they are not you are sadly mistaken.


Image from Pinterest.

Lawyer Bill LaTour won my case in Southern California and I can’t count all of the doctors I went to and specialists and career counselors and all the questions I had to answer and psychological assessments in order to finally present my case. Most who are disabled would rather be working. In the final hearing all of the doctors and the career counselor appeared in a small courtroom and they’re the judge asked me what my name was and after about 5 minutes he reviewed all the evidence presented by every one of the doctors that I had to see you over the course of a year and a half before he finally awarded me ssi. That took a mere five minutes and those were the only words that I other than that. 

You can’t sue the government but you can sue people who work for the government.  And one by one I will if I don’t get my Paratransit FOR MYSELF AND SET A PRECIDENT FOR ALL WHO HAVE EPILEPSY IN THE STATE OF NEVADA. 

After all, I’m the former President and founder of The Epilepsy Connection which was a grassroots organization in Orange County, California  that helped countless people in California and many other states, and three other countries who had no other resources whatsoever. I’m also the former director of the Epilepsy Foundation sub affiliate in Garden Grove, California years ago. 

In other words, I am a catalyst for positive change and I hope to  merge forces with other disabled people making us stronger as a united team.


 I’ve got arthritis in that left ankle that won’t go away, just as my dad was  just about paralyzed in a wheelchair from osteoarthritis  before he died several years ago.

After having a drop seizure- due to being out in 115 degree heat when I shouldn’t have been.  That because I was having problems but two idiot’s went against my epileptologist’s letter stating that. I think that’s a crime isn’t it? 

DAN HOWLAND AND JIM CHAMPOU, THE IDIOTS WHO DIDNT VALIDATE THAT DOCTOR’S LETTER AND THOUGHT DR. EVANGALISTA WROTE IT FOR THE FUN OF IT, INSTEAD TO PREVENT INJURY TO ME.

Maybe no lawyer in Nevada has wanted to take my case YET, IT IS A crime AND A  double crime since Dan Howell and told me he didn’t care about people with epilepsy to my face  and he said he didn’t care about learning about anything to do with them he liked being ignorant. After everything  hits the fan and people pay the price they should have paid a couple years ago but I wasn’t any kind of health condition  to be able  to press charges, I hope he’s fired  and not only that I hope charges are filed on him  for endangerment and that is endangering me.

I believe the max I can do is $10,000  in the state of Nevada for him personally and  also Jim shampoo $10,000 and also Tina Quigley, the head of RTC , who all she could say during our phone conversation was “uh huh” after I said anything.  In other words, she did nothing and could have been forced my Paratransit ID once suck it but she did not. That’s another $10,000.

 They put my life at risk because I was having drop seizures of time and that was written in the letter so that’s called personal injury and I with all the evidence that I can bring which is a hell of a lot of it I call it instant win.

It is the principle here. I am hoping I won’t need to and they will come to their senses. Maybe the  Governor can hear the whole sordid story and make it right trade she seemed like the most level-headed person in the most articulate intelligent person I’ve seen hold office in Nevada so far.

 I think Nevada has some disabled Senators who have disabled minds and need to greatly educate themselves about what all this abilities are an update themselves with 2017.

Civil rights and then do the educate themselves on disabilities that go far beyond physical ones in a wheelchair.

The statistics on disability is there are more people with invisible disabilities like epilepsy than those with more visible ones.

California was better with Paratransit by far.  I had Paratransit in California over 25 years and I come to the 1800’s Wild West High Desert of Nevada and here they turn me down. I called Paratransit once waiting 2 hours and after the two hours the lady said, ” oh didn’t you know? Just because you call Paratransit doesn’t mean it’ll show up!” 

Ignorance again.   

You shouldn’t be a leader in the state if you are igorant in the ways I have seen. Dina Titus, Head of Transportation had no desire to help me get what I was owed as a disabled American citizen.

Nevada Medicaid pays for my medicine now and I hope it always does because it’s the best combination I have ever been on in my now 55 years young.

 

 

Even all that being said Senator Reid doesn’t think I have a disability-isn’the that rediculous? 

I even sent Senator Reid pictures of my medicine and all the vitamins that I take and the doctor’s letter from my specialist who prescribes my medicine and the copy of my medical ID bracelet and he still didn’t think that I was disabled!

 Living in Nevada is like living in the wild west where they think they can do anything. The American with Disabilities Act is something that I know all about  and because I was turned down for Paratransit here I could sue every senator in the entire State and when  because my civil rights were violated and I broke my left ankle as a result of having a drop seizure a year ago and was nearly in power chair after! Was I disabled enough for you then Nevada  huh 7 read  the governor ? Is that what you want to but everybody Wheelchairs and that’s the only kind of stability you think exist in this world ? Wake up  you need to get your head examined and go look at the medical book and read it all of this abilities that exist in this world there quite a lot of them  we have a lot of components to our bodies not just a physical body  without your neurological system you’re nothing you can’t write you can’t speak you can’t do anything.

I now have arthritis in that left ankle, which makes might a personal injury case that I didn’t want come into the state I just wanted a place to live it was cheap that’s it I didn’t come here for the gambling  I don’t drink I don’t smoke I don’t do drugs and I don’t gamble why did I come here for cheap rent that’s it hat’s part of living in Nevada is not something I like but it’s also against my civil rights too. 

I’ll be talking to the governor of Nevada this year about all of those issues as well as others that affect everyone or just same old and about raising the cost of living index for all people who are disabled to something that allows them to live in dignity, which the $728 a month does not.

I want to see that all people can afford tm what they need to keep them alive. 

Hear that pharmaceutical companies? 

Remember the human element. 

Remember why you’re developing the medicine in the first place.

 What good  is a fantastic medicine with a high efficiency rate and the low side effect rate and a huge success rate if the patients cannot afford it? I’m asking you that question mark I was made a rocket scientist for 15 years and I’m fairly bright that’s not even logical is it to make the price outlandish.

If drugs are so outrageously priced limiting who can take them, it defeats the purpose why the drug was ever created.

 I wish the scientist who developed the drugs could price the drugs because then they would be priced at something reasonable that makes sense. 

Because people who are scientists creating these compounds to help people would never charge people outrageous prices because they’re more humanitarian in spirit than the simply sales reps promoting the products getting huge commissions driving company cars!

 Let the pharmacology medicine developers help set a price that is more accurate.

 I saw pharmaceutical reps every time I went into one of my neurology offices in Orange off La Veta when I was married years ago.  I think what they do should be against the law because they’re giving doctors Kickbacks to promote drugs. because of that, doctors are  not looking at to the best needs of the patient. The Pharmaceutical reps  are allowed to  dangle money in front of a doctor’s faces and saying over here I’ll give you this money -a bribe.

How in the hell can a good doctor think straight  with the ” Wheeler Dealers” walking around dangling incentives.

Pharmaceutical companies remind me of real estate companies in California. Everybody is so greedy that they have to make “over profit” aking for way more than is affordable for most everyone except millionaires. 

 Medicine companies: Remember the people FIRST. Without people in this world you have nothing. Nothing but dust and a bunch of chemicals a test tube that people NEED.

Written by Paulette Motzko on April 5th 2017 at 12:48 p.m. 

This is story was aired on Totally Inspired Mind: Where Posititive Minds Congregate and Beautiful Soul Shine.

TotallyInspiredMind.com

I created the following document on my Galaxy Note 4 Phablet and the edits are coming in on my Samsung S2 tablet. My phablet  overheated just like I do when I even think about the things that I’ve been through for no good reason.  I almost was history in this town so rather than be history I’m going to make history instead, making it better for everyone.








Edited  April 5th 2017 at 3:36

Written by Paulette Le Pore Motzko 

Obamacare is the Law of the Land: CNN News. Commentary by Paulette Motzko

Ryan: Obamacare is the law of the land

http://www.cnn.com/videos/politics/2017/03/24/paul-ryan-on-obamacare-mobile-orig-llr.cnn

All I can say about this is “thank God”, because everyone was so anxious to rip a Landmark Insurance care system that was helping tons of people, including myself with epilepsy – a pre-existing illness not covered by any insurance ever in history until Obamacare.

 Trump was so anxious to rip apart a system they gave people life literally and that includes cancer victims, people on dialysis and other very serious illnesses and disabilities. Obamacare covers real needs that are not something you take lighthearted.

 Optimally, when people’s lives are at stake- great thought is involved before enacting a policy that could adversely affect countless people.

 I was really disheartened by the way congress was handling things and so happy that the prayers and all of the things which I’ve been sending out if are heard.

Nobody  was coming up with what they were going to be replacing Obama Care with. 

You always create the replacement first before you yank the program out of everybody’s hands.

It was ridiculous how they were handling it. 

I am very happy that the popular vote won and nobody wanted to take the very needed program away.

Come on Congress! Use your brains all- of your brains together. I was married to a rocket scientist and you never ever destroy something that is working ever!

I don’t know what Republicans do but Jesus Christ have a heart!  Countless people who rely on this program to keep them alive! That is not kidding and I’m not exaggerating one little bit.

Republicans get your heads out of the sand and wake up to the reality and do the smart, responsible thing, the intelligent thing the triple winning things that shows you are human beings who care about the world and not just yourselves.

Replace Obamacare with a program that supersedes it. 

If you can do that go ahead with the other program. Until then, don’t you even talk about taking it away or every disabled person in the United States will come knock on the Capitol building  door and picket.  after all, you can’t sue the federal government but you can sue people who work for the government and if people died as a result of losing Obamacare they have a right to sue every person that signed the bill to do it. And that is a fact look it up.

That just goes to say and it goes right along with everything else Trump is done. Trump is a Loose Cannon as far as I’m concerned; he doesn’t think before he does anything he doesn’t care about the big picture.

Trump just wants to be a dictator like Hitler and he doesn’t care about people or the big picture Community or people’s lives period just wants to see his name in the lights like the god-forsaken truck building it’s down in downtown Las Vegas and I just looked at it and I’m sickened by it.  you see people can have lots of money but if they’re horrid human being they’re not really successful. Trump trump is apathetic to human beings and their suffering. He just wants to walk on everybody he can so he can try to make it to the top. That parallels everything that he’s done in business and in his personal life. I hope he’s replaced with someone who’s a human being soon. I hope things escalate to the point where he’s actually impeached, which I would help make that happen obtaining signatures.

I would like to see our president represent the ideals that America is famous for including freedom for all people, any race color and create and that is not what Trump represents.

Written by Paulette Motzko Saturday March 25th 2017 at 7:14 a.m.

Your Epilepsy News Resource

http://paper.li/PollyMotzko/1356861050#/

More people have epilepsy than you are aware. Many people you know have it but they just wanted to tell you later, for fear that you won’t be their friend or something.

All you need is a blow on the head, high fever, convulsions, severe enough infection or a coma and you could acquire it. I had all those things and nearly died before my second birthday. 

In other words, everyone is susceptible epilepsy under the right circumstances.

I was diagnosed with complex partial epilepsy when I was 9 years old, but I had simple partial seizures when I was four but didn’t know how to describe them. Many seizures are difficult to describe, because they don’t feel like pain, but rather a sensation.

I will always be a spokesperson for those who have the disorder and care about those who disabled because of my experiences as now a mature young minded senior of 55.

I hope to make this newsletter make money (monetize it) this year and work with CURE Citizens United for Research in Epilepsy to use their 501C3 tax status and accept private nations from people and foundations and companies giving them banner ads.

Say prayers all this, with my tenacity becomes a reality.  I have how do you touch bases with someone in marketing from cure already and so the wheels are turning in a very positive direction.

Paulette Le Pore Motzko is the creator and editor of Your Epilepsy Resource Guide and in the past the founder of  The Epilepsy Connection which was a grass roots organization in Orange County in the late 1990’s and former Director of the sub- affiliate in Orange County, California of the Epilepsy Foundation.

The Quest for The Cancer Cure for Sunday, February 26th, 2017

http://paper.li/PollyMotzko/1384241312#/

There are 19 contributors in today’s issue of The Quest For The Cancer Cure.

Paulette Le Pore Motzko is the Creator and editor of the Quest for the cancer cure.

 If you have any ideas on how to monetize this newsletter to help promote raising money for the cure for cancer, contact Paulette Motzko at totallyinspiredpc at gmail.com.

 You can also contact her at 714-728-6037.

Your Epilepsy News Resource for Valentine’s Day 2017

http://paper.li/PollyMotzko/1356861050#/

There are 198 contributors in today’s issue of Your Epilepsy News Resource. 

More people have epilepsy than you know. They probably just afraid to tell you and disclose the truth for fear that you would look differently upon them.

Paulette Le Pore Motzko is the creator and Editor of Your Epilepsy News Resource.

Read. Learn. Empower Yourself and Others With Knowledge. 

Knowledge is Power. 

Written by Paulette L Motzko.

Photos created by Paulette Motzko

Me at The Texas Station Hotel and Casino last night. 

Photography by my friend Miss V.

Photo editing by Paulette Motzko

February 14th, 2017

Paulette Le Pore Motzko: A Pictorial Story Through The Years

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This is a work-in-progress folks. I’m still going through photographs that were my mother’s and taking pictures of them one by one and adding them to this post. After all the pictures are added then I’ll add text to it. Rather than not publish it and keep it private like I had, I thought I would just Post-it and let you guys enjoy it while I’m building it.

Paulette Le Pore Motzko

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My Mother is Dying But Her Spirit Lives Through Me

I was a caregiver for my sweet mother Ramona Lea Le Pore who on the last decade of her life was diagnosed with Alzheimer’s disease.

My sister in law contacted me to yell me mom has a tumor on her kidney and is now dying.
I knew the time would come when mom would leave this earth and touch the face of God, being reunited with dad in heaven, but I wasn’t prepared for so sudden of tragic news.

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In my old kitchen drinking tea with mom after making dinner

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As long as I am alive, mom’s name will be in the prefaces of the books I will write, and so many creative things my mother helped show me how to do by believing in me: piano playing, cooking, poetry, lyric writing and singing.

She was my cheerleader, my best friend, my confidant and encouraged my creativity. I miss hearing her voice and laughter.
She was the most appreciative person I ever knew or will know.
That’s why it was a joy to do anything for her like cook her favorite meal.

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Mom and I in the 16 x 20 photo to the right on my desk last Christmas 2015.

Little would I know that the photo I created to immortalize a stellar moment in time would be the only vestige of my mother to keep me going. With no ability to make phone calls or talk to her the photo was and is all I have.

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Mom and dad when dad was in The Air Force

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I had been thinking of mom all week and just feeling something strange like an inner voice telling me mom might not have much longer to live. This morning I looked up at the 16 x 20 mural I had made of mom and I happy in Huntington Beach, CA and am happy I immortalized the moment.

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Mom sitting across from me happy on a beautiful southern California day at Ruby’s Diner.

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Mom from the time I was 4 years old read to me and taught me phonetics, opening my eyes to wider worlds. She was a visionary before that word was popular.

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Mom taught me to see the beauty in the simple pleasures of life….in flowers, nature and taught me to cherish people and take care of the things you own-and in that order of priority.

Mom loved being useful and when she cared about you, she would go to the ends of the earth to make you happy. If you complimented something she might give it to you!

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The photo I took from the wall that was cut from a 16 x 20 that survived a fire. Much like my mother, the photo was resilient and a survivor.

This photo that’s on my upright grand piano and a crucifix that belonged to Nanny my grandmother are all I took when I was told “take what you want from mom’s stuff.”

Mom was alive but with Alzheimer’s disease and if she didn’t put it in my hand I wasn’t going to take it. I wanted to be remembered for what I gave her instead of what I took from her.

Hearing the birds singing their morning song at 4:46 a.m. I am going to wrap this up by saying hug those around you who you care about. Live life so you have no regrets and give more than you take. I sincerely tried to do just that with my mother but I will miss her terribly. Her smile was like the sun to me.

Please pray for my mother and family and I. Thank you.

Written by
Paulette Le Pore Motzko
Photography Paulette Motzko
July 4th, 2016
4:50 a.m.

Love, not pity, was 5-year-old Julianna Yuri Snow’s lesson

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Julianna Snow’s Light will never ever grow dim. I am saddened that the world will not be graced by her presence any longer. For never having met her, she touched my heart and soul in a way nobody has.”

– Paulette L Motzko

June 21st, 2016 at 8:37 p.m.

Love, not pity, was 5-year-old Julianna’s lesson
http://www.cnn.com/2016/06/21/health/heaven-over-hospital-julianna-snow-reflections/index.html

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Paulette Motzko author/blogger at The Red Rock Resort recently

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In my humble abode with books and teapots in view.

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Of all the photos I created, this one reminds me of Julianna Yuri Snow the most.

God bless your wonderful, sweet courageous soul Julianna Yuri Snow.

You touched my heart and I never got to meet you.

Your story touched me and because I am a caring lady,  tears are streaming down my cheeks,  which us not what you wanted, but I love tea parties too and only wished you could have experienced many MORE of them!

My most sincere condolences to the extraordinary Snow Family. You are as courageous as your sweet daughter, just in a different, supportive way.

Paulette Le Pore Motzko
June 21st, 2016 at 8:20 p.m.

Updated on June 22nd, 2016 at 9:22 a.m.

Google Talk The Global Translation Chat App & & Paulette Motzko’s Thrill of Discovery

I learn many things new through the course of my day everyday. I have always had an unquenchable thirst for knowledge, even since I was a small child at 4 years old, learning to read, and then learning phonetics. I learned the meanings of the prefixes and suffixes when I was 6 years old.
I learned the value of a book and the extraordinary concepts within each cover, and libraries became one of my favorite places, and still are.

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Hot off the press I just created this image to go with this story from a photo I took in Vista, CA about three years ago now.

Photography & Digital Arts by Paulette Motzko

There was never a dumb question around our house and every night around the kitchen table, before we would eat dinner we would bless the food, thank God for everything we had, and look at each other and thank God we had each other. How I wish it was that way today. But people change and so you change with it.

My dad would ask everyone what we learned that day. He would go one by one, and ask each one of us who’s the most extraordinary thing we learned that day. If we didn’t learn anything he would say “go pick up a book” or “how are you doing in school” and things like that.

Every night at dinner time we would sit around our table and we would share what we had learned that day.

Yes, how I wish life was like a projector that you could go back in time and make my siblings remember when they had a heart and soul, but that’s not how life works. Change is the only thing we can count on and those who adapt the best do the best.

Yes, we sat around with a painted picnic table that was painted by my mother and communicated with each other, laughed, my brothers told jokes, and we were there in the moment.

Our family couldn’t afford a kitchen table like the kind they sold in a furniture store, but being the industrious people that the Le Pores are, my dad bought a picnic table that my mother painted white.

As always mom had this way of creating something out of nothing, and when she was done, the table was painted and varnished and had a really pretty flower arrangement on the top of it.

She then bought some yellow gingham sheets that she found on sale, and transformed them into beautiful drapes for our huge kitchen windows.

25 years later, after my parents sold that first house they bought for a mere $20,000 and sold it for $100,000 years later, those drapes are still there. People did not want to take them down and loved them and bragged about how beautiful they were. It was my secret, that they’ll never know they were made out of sheets.

These remain to this day some of the most Stellar memories I have of my childhood.

My Nanny always told us a family who prays together stays together. It’s something she swore by. It was imprinted on the Rosary she prayed on everyday that glowed in the dark. Her words to this day have lit some of my darkest days much like her rosary beads glowed up in the dark as she prayed Hail Marys.

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We prayed together then and stood by each other. It’s just too bad, my older siblings sold their integrity getting the profits of my parent’s huge duplex, after my dad’s death. My brother in law was like Hitler as power of attorney and and my siblings fell for his half cocked, uncompassionate and unfair treatment of both myself and my mother with Alzheimer’s disease. I was the only one who looked out for her it seemed and spoke for her with a voice she no longer possessed.

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We could see each other, side by side, and when my dad made money selling major appliances and the table went outside…we sat farther apart. Then the house began to be filled with state of the art TV’s and a huge stereo. The television was on more and we talked less.

I saw this big solid maple, fancy kitchen table being delivered with big clunky, heavy chairs I couldn’t lift, and we sat apart from each other. I liked the picnic table better.

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Necessity creates innovation and ingenuity. Some of the kindest people I’ve ever met in my life are some of the poorest. They know how to do it, that they know how to be industrious, and they know as I’ve learned, to do without and make do with what they had.
They have more compassion for others in the same situation.

Back to reading and knowledge..

Mom read it to me everyday, and my sister bought me Golden Books that I read, each one of them looking at the pictures and being immersed in the stories, sounding out the words.

If I didn’t know what the words were, we all played a game where I would figure out what the word meant by taking the prefixes and saying what it meant. Most of time I would get it right with a little fine-tuning. That would add to my vocabulary everyday.

When I knew how easy it was and the extraordinary potential that a person would possess if they could read, assimilate and have the command of the English language, the world was my Pearl.

Like Helen Keller having Anne Sullivan spelling out the word
w-a-t-e-r in her hand in sign language, she knew everything had a meaning.

Mom was my Anne Sullivan, especially as an unpopular kid recently diagnosed at 9 with epilepsy. There was no such word as bullying in school; kids just did it and nobody cared or did anything. Apathy to the max in the school systems.

9 WAS A PIVOTAL AGE FOR ME. LIFE DEALT ME ONE CURSE EPILEPSY BUT IT ALSO BROUGHT A PIANO IN THE HOUSE AND MUSIC, THEN MY LOVE OF COOKING EMERGED AND WRITING WAS SOON TO FOLLOW. IF GOD WAS A CARD DEALER THE DECK WAS STACKED IN MY FAVOR AT A VERY YOUNG AGE.
I just took until I’m almost 55 just see it that way.

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Paulette Anne Le Pore at 9 playing a song I composed called “My Melody” after mom showed me 4 chords and Nanny explained how the pedals worked……

In 3rd grade at Show and Tell I Showed and demonstrated to my class what the piano did by playing all the songs I wrote. Bringing in bullfrog were boring to me!

Every thing ever built or ever created has a name. The more we understand what those things are the more we can understand our place in the world. Also, the more languages that we speak the more than we can understand others and their cultures and find a common denominator within the two.

As in most days I don’t quite ever know what I’m writing but I never worry about it; I just write.

People who put on the editors cap and are over critical too early in the creative process or worry about what other people think of what they do– never do anything because the creative process is squelched.

Create because you think it has merit, or you think it’s beautiful. It doesn’t matter that the world doesn’t think it’s beautiful or does think its extraordinary. Create it because you feel your artwork is in the very essence of your soul waiting to escape like a butterfly in a meadow and you want to share the reverie with others…and the people in the world are the flowers in the field.

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you know it is that’s why are you think I can help somebody or you feel it’s good. And once you create something you throw it out in the universe and you hope it touches the lives of people and inspires them or shows them a new way. When it does then it’s extraordinary because then it’s a triple win. It’s the people whose viewpoint on what you do make what you write and every word you hand chisel come alive.

When I was a small child I held a book in my hand with a feeling as though I had the whole world in the palm of my hand. I also knew there was so much more available to me and I was just touching a small microcosmic particle of the knowledge available in the World.

Now have a century later, with me at 54 years young, I hold my Galaxy Note 4 phablet with over 100 apps on it, ebooks, over 5,000 high definition photos, and programs I used to have on a clunky big computer that I recently sold. I installed Microsoft Office and MS Word, allowing me to create documents with vocal recognition software for the first time in my life.

You’re talking about a person who types eighty words a minute but can now type with this new technology. My phablet types for me and I edit. History breaking stuff. Pretty cool, huh?

Thanks to engineers, and IT specialist and computer scientists who created the internet systems with satellites in the sky like my ex-husband the rocket scientist help put up with Boeing, we can do things that we never ever thought possible.

I’m old enough and I’ve seen both sides and it is all pretty extraordinary.

I have had this Google Talk app on my phone for better part of a year and I didn’t know that it was a translating device that I could talk to people in their native language in any part of the world for free.

Now that’s a huge piece of info because I have over 800 friends on Facebook and many of them were in Italy, Thailand and the Philippines and Africa. I can learn their language by using it and that’s what’s so extraordinary about it. It comes in handy for business as well.

I can learn figures of speech in in their language, adding color to my writing. This matters to me. I have some baker friends who are artisan bakers in France and I would love to know and understand more of the French language and the pronunciation of how the words sound. Google Talk helps with that.

I hope that this article made you look at the world little differently. If it did, that makes me really happy and that is the coolest thing in the world.

When you change someone’s mind or you Enlighten them to a new fact that they didn’t know,
You’re in essence opening a magic door to new horizons that were unexplored before. I hope you can use some of this in your life, that you find new ways of thinking brings subtle changes in your life.

Written by Paulette Motzko
All images photographed and created by Paulette Motzko, PLM Studios, Las Vegas, NV

April 26th, 2016 at 8:26 a.m.
10:20 a.m.

Severely disabled man with over 25 serious conditions shares inspiring message: ‘I’m still loving life because it could always be worse’

Once in our lifetimes comes a courageous, strong, capable, disabled but able, hero like this young man. The next time you think of complaining about the food you have in your cupboard or fridge-how would you like to not taste at all?

I am awarding Mr. Peter Foster The Extraordinary Human Being Award….for illustrating a heroic and positive attitude amidst great adversity.

God bless you!

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Extraordinary Human Being Award Designed and Created by Paulette L Motzko, March 2015

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Here is a wallpaper I found on Zedge I love that I give to you because I think you embody the DNA of all these wonderful qualities.

80 countries read my blog after two years and I am disabled with an invisible neurological disorder called epilepsy.

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SINCE I ALMOST DIED 5 times in my life….and am still here, I will always go up to a disabled person and say hello.

My best friends have always been disabled. I didn’t choose them for that reason. ..they were GREAT human beings with integrity and courage.

All those reading this -member to be kind to those who are different and always be grateful for what you have.

MY FIRST FRIEND WAS CHERYL LIGHT CAP WHO WAS BLIND. SHE DIDN’T JUDGE ME.

I DESCRIBED WHAT SHE COULDN’T SEE IN TECHNICOLOR DETAIL AND WAS HER EYES. She could feel the colors on my dress and was smart as a whip…..both of us.
Join his blog and spread the word to be kind.
I am so glad Mr. FOSTER HAD THE COURAGE TO COME FORWARD AND SHARE what he has been through. People like him have been given special gifts like an attitude that focuses on the good, the great and finds super-human endurance.

Written by Paulette L Motzko
Copyright March 2015
5:15 a.m.

Everyone Has a Story To Tell – Make Your Story An Extraordinary One by Paulette L. Motzko

We All Have Our Story to Tell
Written by Paulette Le Pore Motzko
Copyright October 7th, 2014
All Photography Quotes Created by
Paulette Le Pore Motzko

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In life we never know what we are getting and what kinds of blessings or tragedies may befall. You can only stack the deck in your favor so when the hand is played you come close to winning.

If every one of you reading this sentence could realize that nobody on earth was dealt a perfect life, then maybe you won’t feel so isolated or sad, just knowing you are not the only one. Everybody on the bus every day I see has their own joys, family, friends and struggles. Just because you don’t know them, don’t fool yourself. Problems in life don’t omit anyone, no matter how much money you make. Often the richest people have the most screwed up lives. They have no idea what to do with all their money and have lost the ability to enjoy simple things. They spend their lives trying new drugs and paying for expensive thrills that leave them flat and uninspired.

As a child who was disabled and went through a merry-go-round-of medicine for epilepsy before I got to the one that worked when I was fourteen-years-old.

I learned big words and related to teachers better than my classmates who made fun of me because I was different. All the things I went through in my early years toughened me up to be a soldier of life and an ambassador of compassion and good will who can related to everyone with a cane, in a wheelchair and who strives each day to know health firsthand and independence.

Even though in life you may have looked at hell in the eye like I did and been through moments where you nearly died; remember you made it out the other end.

A visualization to picture your mind that I created after going through one of the worst year and a half of my life is:

I can see myself walking through a huge hoop of fire and coming out the other end transformed, stronger, and smarter and where ingenuity is in my DNA. After helping my parents pay their house payment thrown the span of 15 years and being betrayed by my siblings I grew up with; it redefined my existence.

We were once a good family, not a perfect family, but we were never an apathetic, hate filled family. There was so much negative dynamics going on between my older siblings and that no matter if my mother needed help, if I could have done over again, I would have looked out for number one and that is all, and got the hell out of there. I can see that in retrospect and wish I would done that, but if I had mom wouldn’t have anyone who gave a damn and she wouldn’t be in the senior home she is now.

The things you learn in life gaining wisdom are vast.

What have you learned in life?

Are there lessons you can pass on to others?

What is a lesson you learned that you can pass on to another to make their path smoother, watching out for rocks and boulders?

You see, when you do without you learn to compromise. You learn how to substitute and you truly get to know what it is like to live on a bargain basement existence that only those who frequent places like The 99 Cents Store, Dollar General remembering numerous times since moving to Nevada and having my SSI cut by $150 a month-times when I couldn’t afford anything in the dollar store!

What I do know out of the tragic and almost mind boggling callous and low class way I was treated in the end of making great sacrifices for my mom and financially helping my dad by living on the duplex he was still making payments on after 2001. I learned that there are people who look like a human being but are missing a soul and a conscious; my siblings fit that description. I only hope that they regret it one day. I know I did the best I could in spite of going through adversity myself. In other words, we are only responsible for ourselves and there comes a point where all the talking in the world isn’t going to change things.

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Move on. Look back and accept what you did and embrace the choices you made.

Just because you were betrayed doesn’t mean you have betray someone else. Just because you were hit, doesn’t mean you have to hit someone else. Someone else’s cold heart doesn’t have to be yours and shouldn’t be yours.

Why the Lord allows good people to go through hell none of us will know, especially when their hearts and souls are good.

In life what matters most is for you to not focus on the dark aspects or “shadows” in your life. Look at the “bright spots” that sparkle like Orion on a clear night in the desert. Keep the friends who have become family; they are your new family.

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Just because you are related to someone doesn’t give them the right to be in your life. To have the right someone has to treat you with dignity and respect. If those elements are missing, then you really don’t need the person in your life.

Remember, every negative person drags you down. Every positive person lifts you and your spirits up.
You want to be dragged down to the nether world, or do you want to keep people around you who also set their aspirations on high and noble things. Forget the rest.
I pray to meet people who are kind, caring, compassionate who care about the world around them and who care about children, the environment and the world issues.
Here is a cool visual for you: I also pray to NOT MEET negative, pessimistic people and to avoid or REPEL people with rotten intentions people just like water droplets on Vaseline.
What story will you retell people?

Will it be a triumphant one? A Courageous One? An Extraordinary One?

Make the things you say be as amazing as yourself, because the spoken word is what people will remember about you.

Do you want to be a mina bird of the same, sad story or do you want to force yourself to grow, find the wisdom in your pain and to help people they are not alone.

If pain and suffering has to be, let it be transformed to bring someone up from their aloneness.
I hope this 1,534 word story does just that. Come out of your cave and light the light and let it shine on only the good and the great. No matter what your faith, don’t lose hope and never quit believing the good and just win. And even if they don’t “win” they show everybody in the world how they can! After all, people are only winners or losers in their minds. What you think you are you will be.
I hope every word changes your minds, and transforms your spirit and helps you think about the experiences you have gone through and how you carry them around.
Troubles can be on your shoulders like lead weights or you can problem solve, pray and meditate and gain insight. To do that you need solitude and uninterrupted time so you can think. When was the last time you gave yourself that gift? It is through self-introspection that you grow and transform into something greater.
Learn to journal and write every day your innermost feelings. At first at will feel awkward doing it, but it will come more naturally with time. In time you will look forward to it. Make it a minimum of 30 minutes. Go to a library where you can be guaranteed to not be bothered and where it is quiet enough you can hear yourself think. Preferably have nobody see it but you and God and your soul.
In your first journal book entry: make a list of all the things you are thankful for this moment.
Now make a list of things you need to work on to be happier and feel better.
Number them and create a plan of action.
Make the most of what you have now. If you want more, work for it all and enjoy what you have NOW. This time will never come again. When you are 85 ladies you will think you look like pretty hot now! Hey guys, tell your mom and dad you love them, they won’t be around forever. I am reminded that our time on this extraordinary earth is limited. Make the most of your travels here.

It is only then that you can take what were problems and setbacks and throw them in the sea and watch the seagulls take them away to the wild blue.
Put some beautiful and inspiring music on iheart.com radio or Pandora.com and get in touch with who you really are. When you do that, you will find you have way more going for you but you just overlooked what you were given.

Written with love to the world.

Paulette Le Pore Motzko

October 7th, 2014
5:15 p.m.

Wonder by R.J. Palacios

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I was browsing the bestsellers at Barnes & Noble… (One of my favorite past times).

I spotted “Wonder” by R.j. Palacio’s award winning first attempt at a fiction novel, which turned out to be fabulous. The more I read about what the book is about, the more I wanted to read.

It is a story of courage about a young boy with a facial deformity who longs to be treated like the other kids and who longs to be accepted for who he is inside.

Gabby The Girl With The Magic Smile-Needs Your Help!

Recently I met a wonderful lady named Ester Korsizyk who was making some copies of a sign to help her beautiful grand daughter Gabriela-(otherwise known as “Gabby”) who was recently diagnosed with amyotophic lateral sclerosis in November of this year. I thought it was a Christmas Newsletter Ester was copying at first, and then upon closer inspection, it was much more….so I had to know more. When I said hello I to Ester and once I knew that the family was struggling to pay for medical expenses and also how much it would be great to tune the family into resources-I figured out why we were supposed to meet.

I introduced myself to Ester-and told her I was a writer, photographer and marketing consultant and wanted to write a story that I would put on both of my web sites Totally Inspired Mind and Children Are Our Future Now!

All of a sudden Ester looked at me and I could see tears fill in her eyes and she said I was sent by God to her. She was a Pastor’s wife, though I didn’t know that then and was involved in many programs of helping others herself. The next thing I knew we were hugging each other and after today, talking to each other and meeting at the Starbucks I go to all the time-we are great friends.

It is something how God puts people in your life for a reason and sometimes I immediately know what that reason is within a short time. I don’t know if everybody is that way, but over the last decade-my inner senses and intuition have been magnified by 100%.

As Kelly Clarkson’s song “Stronger” says that I love so much, “What doesn’t kill ya makes ya stronger!” I have become stronger over his last year with the many trials and tribulations I have been through, but also I am more quick to lend a helping hand to others. To me to expend my time in ways that I know will give dividends back to someone else is rewarding.

That night I went to Taco De Ojo, since I was doing work there anyhow, and typed up the following post that I will post. I also am going to include segments of the beautiful sign that Ester wrote on the signs she made.

Abby Korszyk-A 10-Year-Old Girl with a Sweet Smile Needs Your Help!
Written by Paulette Le Pore Motzko
December 7th, 2013

There are times in my life when I know prayers are being answered before I have time to think about it. But I pray and envision me meeting people who are kind, caring and who care about the world, children and animals and also to avoid those who aren’t those type of people, increasing my odds of attracting what I want into my life.

I was at Staples in the copy center where I am always having work done and saw a sweet lady who looked like she was printing Christmas newsletters, but as I looked closer I knew it was something more. I wanted to know more about the pretty girl named Abby Korszyk whose photo was emblazoned on them with the pretty smile. As I read more on the beautiful color signs Ester Korszyk-grandmother of Abby-I learned that Abby has Lou Gerhig’s Disease, otherwise known as ALS, and it is rare that a nine-year-old child is ever diagnosed with it. Abby was diagnosed with it in November of this year 2013 and Ester and her family are teaming with her church pastor and asking for donations which will go into a fund for her son and daughter who are worried where the money is coming from to afford her care.

I told her I was Paulette Le Pore Motkzo and I am a writer, photographer and marketing consultant with several blogs seen and read all over the world. I told her I would put it on Totally Inspired Mind: Where Positive Minds Congregate asking showing where people could send the checks that would help Abby lead a long full life.
I also am doing research on ALS and am finding resources to also help the family.

It is also known as Amyotrophic Lateral Sclerosis. The finance department of ALSA Amyotriphic Lateral Sclerosis Association is 818-880-9007- ex 225. I had never heard of this acronoym in my life and I grew up pronouncing big words in neurologists offices as a kid diagnosed with epilepsy at the same age as Abby was with ALS at nine years old. We are kindred spirits of sorts and I want to see Abby THRIVE and SURVIVE and LIVE A LONG, PRODUCTIVE LIFE.

The address where you can send a few dollars to help with the medical expenses of Abby Korszyk can be send to a special fund set up by the pastor of Abby’s church at:

Gabby Korsyk – call-1-626-367-6310 to find ways you can help the family who lives in Huntington Beach, CA
4702 N. Doxford Ave., Covinga, CA 91722

I feel good about making a difference in not only Abby Korszyk’s life, a little girl who I have never met but my heart went out to her when I read her story.
God bless all who read this.

ALSA 800-782-4747

I am going to email the director about Abby Korszyk and ask what are the ways their organization can help the family and if there are any financial resources that could help them; I am sure there ARE!

If there is one thing I am good at is making people care about things they ought to.

As the CEO, Founder and Director of The Epilepsy Connection for 6 years I helped people all over the world who had that disorder with dual diagnoses and offered advocacy and helped change lives. That is a great thrill for me to know some small action had a big pay-off for someone else.

Through my research and quest to find answers which I always do, I located an ALSA Clinic in the Orange County Chapter

1232 Village Way, Suite A
Santa Ana, CA 92705

Group: ALSA Chapter

Contact: Natalie Villegas
Title: Care Services Coordinator
714-285-1088
Email: nvillegas@alsaoc.org

Since writing this article at Taco De Ojo meditating and saying silent prayers to myself that Abby would defy the odds and surpass the two year time frame doctors have given her-Natalie Villegas contacted Gabby’s parents.

ALSA is tuning Gabby’s parents into resources, clinics that have state of the art diagnostics and other life changing things now.
I feel wonderful in knowing that an hour of research is paying off in concrete ways for Gabby now.

I was once a kid like Gabby when I was diagnosed with complex and simple partial epilepsy in January 1971 at age nine. It was a horrible time when kids were cruel and made of anyone different from them. It wasn’t until I was in high school that I truly had my first real friend when Tegretol came out that controlled my seizures and allowed me to go to school and not miss classes and feel health for the first time and independence long awaited for.

I hope to meet Gabby one day and see the beautiful smile I see in the photo. I am in the process of adding in the photos now.

Paulette Le Pore Motzko

Ester -Gabby’s Grandmother wrote this in her sign she created to set up outside asking for financial support for her and her family to help pay her medical bills etc.

“At a very young age Gabby wanted to be a dancer, she loves to dance. Her favorite color is green, I am not surprised. This is what the bible says about the color green. Praise, eternal life, vigor, prosperity, mercy, restoration, health, healing, new beginning, freshness, God’s holy seed, harvest, sowing and reaping, immortality, fresh oil, new life, joy in hope.

Rom. 12:12, Ps 23:2, Gen. 1:30, Lk 23:31, Rev. 22:2, Ps. 92:14.
Gabby is the picture-perfect example of having “joy in hope”, when you see her she gives our lives a freshness, a sparkle of how each of us should be living life.”

“I would like to close with a plea from all that read this, to send prayers and smiles to Gabby and her family. Gabby, even today has never lost her smile. Even with this devastating news, her passion for life still surrounds her. I can’t help but look at the color green in a completely different way.”

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Some People Feel the Rain and Others Just Get Wet….

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Truly Seeing The World Around You by Paulette Le Pore Motzko

Copyright March 2013

I love what this said in that it illustrates that some really don’t truly live but go through life blinders on to the sights, scents and amazing small miracles they encounter. When we open up our world to the sights and scents and all the experiences in life, we truly live.

For instance, here is a great exercise to become better at TRULY SEEING LIFE. PRETEND YOU ARE EXPLAINING WHAT YOU ARE SEEING AND EXPERIENCING TO SOMEONE WHO IS BLIND.

I had a great friend when I was younger who was blind and I used to explain in glorious detail what I was seeing for her and only wished she could see what I did. I also had a client who was blind and had epilepsy and he called me for help when I was the CEO/Founder of The Epilepsy Connection. It was Friend & Family Day at The Braille Institute and none of his family wanted to go with him, so I became his family and was honored.

If you have never volunteered your time at The Braille Institute, or been there it will literally “open your eyes” to some of the most courageous and intelligent people you will ever encounter. I wore a blind fold to simulate blindness and then cooked (or at least tried to) with the blind fold on. It didn’t go very well because I had no grasp of where things were from each other and I realized what blind people have to go through on a daily basis to do even the most simple things.

Then I wore goggles to simulate being partially blind, which was worse than the other, because things looked distorted and out of focus. Then they gave me a can to walk with and we were supposed to find our way home, with an assistance, who gave directions and described in glorious detail what I was coming up against and allowing my ears to make up for my eyes.

In the center of The Braille Institute in Anaheim on Dale is a beautiful fountain with crystalline waters flowing from it. I have always loved fountains and the charm of them but had no idea there was a distinct reason why the fountain was there. Do you know why it was there?

It was to give orientation to all the people there who had vision impairments-blind or partially blind. They could sense where they were from the center of the building.  My senses were not in tune with it and I never really got a sense for where I was at, but I had an even deeper appreciation of people who were blind, who taught many of the courses and looked just like anyone else. Epilepsy and blindness have several things in common:

1. They are permanent disabilities

2. They are for the most part invisible to others

3. They make those whose lives have been touched by it gain a deeper appreciation for the world around them.

4. Anyone can acquire epilepsy or blindness if the right set of circumstances arose

In my case, I was diagnosed with epilepsy when I was 9 years old and was a very sick child passing out all over the place and it took awhile to find a medicine gave me the control I now have. Consciousness, uninterrupted normalcy was a highly appreciated thing and compassion was a thing I learned at a very early age, along with big words, and hanging around with people who were 30 years my senior because the “kids” my age didn’t understand what I was going through and were not nice.

Going back to the name of this post/article, the next time you go outside on a pretty day, pick up a pen and paper and write down what you see. I mean, really write it down as though you are seeing for the first time and are explaining to someone who cannot see. It will change your world forever.

Paulette Le Pore Motzko

St. Patrick’s Day 2013

Life is a Succession of Lessons Which Must Be Lived to be Understood

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When I was a child of 9 years old I was diagnosed with complex partial epilepsy and little would I know that it would take many years to find a drug named Tegretol to find control in my freshman year of high school before I knew what health meant.

My best friend in 5th grade was a blind smart girl named Cheryl Lightcap, and I have always thought she was aptly named. She spoke with a southern accent and sat in the back of the class with her braille machine. That year the book drive came around and I ordered the story about Helen Keller’s life. On the back of the book it had the braille alphabet on it and I would practice trying to read it and was always fascinated by my friend Cheryl who would so effortlessly read pages and pages of heavy brown braille paper.

Her hands were calloused from reading all the books in braille she did. I was so proud to walk with her and amazingly she could touch what I was wearing and know what color it was-light or dark. I would describe what I saw to her and tell her about the day, if it was sunny and what the kids were doing-other than us.

I would bring cook books and read them in a pink book bag and find a table to read in. The kids didn’t like me because I was different and that stayed that way until Tegretol was introduced in my freshman year of high school. I was able to attend school with the rest of the kids, not miss so much school and not have to work quite so hard. Then boys who made fun of me in years past wanted to “be my friend” of which I wanted no part of. I was the same person, just healthier and older.

I always knew it wasn’t our purpose on earth to suffer and that even though we weren’t understood or treated as the same we were the smartest kids in the class and we had each other and hope; I knew though I learned big words at an early age I was still only a child and I had my whole life ahead of me.

I remember for “Show and Tell” one year in Mrs. Acosta’s 3rd grade class playing the piano and showing the kids how it worked. For a day I was treated better than the rest and the kids were in awe and Mrs. Acosta asked me what conservatory I studied at and I told her I learned how to play myself after my mom taught me 4 chords. She looked puzzled. I still play and have written 50 songs on piano that are copy right protected in the Library of Congress and would love the world to hear them one day.

I wish I knew where Cheryl Lightcap is today. I have searched for her numerous times but she probably married and changed her name. I do think of her often and the special times we had together. I also think of the “Gifts She Gave Me”…of courage, wisdom, persistence, perseverance, and somehow it made what I went through not so bad when I saw that she couldn’t see the pictures in the cook books I brought, and how I wanted her to! I remember how Mr. Hill yelled at me for holding her hand and explaining the world to her and always breaking us up. I think Mr. Hill was a PE teacher and shouldn’t have been teaching at all. It seemed he never took one Child Psychology course and had no heart most of the time.

There are many lessons I learned in life.

1. Savor the now and don’t dwell on the past. This is all we have. Give yourself the Present Called Life.

2. Try not to judge others too harshly until you know their story.

3. Make the most of your talents and abilities and down play the rest.

4. Don’t replay negative things others have said about you-it isn’t worth it and it isn’t fair to yourself!

5. Treat others as you want to be treated.

6. Ask others the magic words “How Are You?” and really mean it when you ask them. It probably was the first time anyone asked them all day.

7. Strive to make yourself better, smarter and happier each and every day so you can look back with no regrets.

 

What lessons have you learned in life so far?

Would you be willing to share a few with the readers of Totally Inspired Mind? I would love it if you did.

Paulette Le Pore Motzko